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Tuesday, January 10, 2012

"Trained attendants and respite care for dementia: testimony from India"

“The Indian Caregiver’s Corner” :

This section is made in part, to explain theoretically the different aspects of Alzheimer’s Disease, the patients and caregivers have to face worldwide… like the impairment process, the different disorders: memory, language, organization… changes in personality and behavior…. But also, the impact of the pharmacological and non-pharmacological interventions like socialization, meditation, physical exercise, the caregiver’s role and difficulties encountered in India. 

Readers are invited to enrich this section to make it an experience-based one, a resourceful section for other caregivers to find there helpful tips/ways to cope with the symptoms, the daily care activities and to face specific situations in their local setting, at home, outside, with family, doctors….

‎"Trained attendants and respite care for dementia: Observations from India", from Swapna Kishore, of Dementia Care Notes and Swapna Writes Blog: 

"Not a single person has ever told me: "We got, on our first attempt, an excellent, hygienic, reliable caregiver who is honest and hardworking, and takes care of the patient without supervision and frees us of all worry and never takes leave. Our patient is always happy with this attendant, and the attendant is always cheerful and happy, too.""

‎"Trained attendants and respite care for dementia: Sharing suggestions for volunteers from India", from Swapna Kishore of Dementia Care Notes and Swapna Writes Blog: 

"For those trying to help caregivers, the pathetic state of available support is disheartening." .... 

"We need help now. We need something to start providing relief soon, in a widespread way. We cannot depend solely on the actions of existing dementia care volunteers, already a small and over-stretched community. In addition to increasing the community of persons committed to help, we must get others interested in creating appropriate facilities."..... 

"Suppose someone works out a good model for an attendant-supplying agency, one that is commercially viable, and makes it available; surely there will be investors and entrepreneurs who will come in? Then it is a matter of ensuring that the work they do is good quality"....


Alzheimer's Disease in India :

Thank you for sharing your experience with us on our Facebook group. I am sure the other Caregivers facing similar situations there would be very moved by seeing all your efforts in making your mother feel comfortable through the disease.

Indeed, each testimony is important for us because other Family Caregivers in India, may find there the support and relief they needed, benefit of your "advises and tips" and you may even have enlighten their pathway then.
So dear Members and Reader, thank you for bringing hope, by participating even if you don't have a "serious" problem/case but even just feelings/thoughts are worth to share. It is really helping us in raising awareness on this disease, to bring support and knowledge for Dementia Care Management in India.

1 comment:

Alzheimer’s clinic said...

Being a caregiver for someone with Alzheimers disease is a challenging position to be stable in my work, however, there are some important steps that I can do to make it easier on myself and my loved one.

Alzheimer’s clinic