Alzheimer's Disease in India Consultancy Service

If you have a project, contact us for advice at hendi.lingiah@gmail.com

Join our Family Caregivers, Volunteers and Care Professionals on Facebook and LinkedIn.

Sunday, October 26, 2008

Dementia Support Group, Mumbai

Silver Inning Foundation in association with ARDSI(ALzm society of India ) Greater Mumbai has started : Dementia / Alzheimer's Support Group.


Presently this group is working from Kandivali to Bhayander in Mumbai. We will extend this to other parts of Mumbai city in phase manner.


This group consists of Doctors - Psychiatrist, Neurologist; Social Worker, Clinical Psychologist and Volunteers.


The group activity is non paid/Free and is more about Support system, Counseling and Training for Family members and people suffering from Dementia/ Alzheimer's.


We Invite Volunteers among Medical Professionals, Social Workers, Psychologist, Family members, House wives, Senior Citizens and people with passion to serve for social cause.


To apply for Volunteers please fill the Form here: http://silverinnings.com/primary%20individual%20form.asp

Also you can write to: info@silverinnings.com

Pls pass on this msg to your friends.
Thks.
Warm Regards,
Sailesh Mishra
Founder President - Silver Innings Foundation,A dedicated Organisation for Elders and their Family Members
Founder – ARDSI, Greater Mumbai Support Group
Advisor - Society for Serving Seniors
Managing Committee Member - ARDSI, Mumbai Chapter

Website : www.silverinnings.com
Blog: http://peopleforsocialcause.blogspot.com/ ; http://silverinnings.blogspot..com/

Monday, September 22, 2008

Need for a safety net, the Hindu India, by Hendi Lingiah


THE HINDU

Online edition of India's National Newspaper

Sunday, Sep 21, 2008
HENDI LINGIAH
As we become an ‘ageing country’, there is an urgent need for an accurate public health policy in the senior care field.

Challenges ahead:
To provide organised healthcare for the elderly.

The percentage of persons aged above 60 in India has been rising steadily over the last decades. In fact, in 2001, its proportion exceeded 7.5 per cent, defining a country as an “ageing country” according to the U.N. definition and is exp ected to reach 8.9 per cent in 2016. But the increase of life expectancy goes with the increase of age-related diseases and developing countries are not spared. The number of people above the age of 60, suffering and searching for care, domiciliary services, specific treatments and specific answers to their needs will increase. Consecutively, the lack of specific structures would lead to discontent. Hence the need to implement a sound public health policy in the field of senior care.

Today, it is estimated that more than 50 per cent of people with Alzheimer’s Disease live in developing countries. Meanwhile, when developed countries have more care alternatives available for a less number of elderly people, they are also trying to improve the current public health system with the aim of anticipating their growing ageing population.

My interest in Alzheimer’s Disease started when I joined an NGO established in the field of senior citizen’s welfare, well known at that time for opening a township for retired people wishing to live an autonomous and still active retreat. This township included a small structure devoted to elderly people affected by Alzheimer’s Disease. It was a nice residential set-up of eight comfortable rooms with bathroom and one common activity room; it was located in a rural part of India. That premise needed to be developed and enhanced; routine, assessments and residents’ health care, even material aspects, had to be looked after.

Thoughtful set-up
We started working with doctors and psychiatrists and in cooperation with them and the team we did the follow-up of patients, the interviews with families, the local staff supervisions… It was an interesting professional experience; it broadened my mind and my interest in the field of ageing and Alzheimer’s Disease and implementing a psycho-social care approach in a 24x7 small residential setting for patients suffering from AD. But above all, it was about making this place a comfortable and enjoyable home for the frail elderly, maintaining as long as possible their abilities and a community life.

Back in France, I’ve stayed connected with the senior care field in India. These days, it seems to me that ageing and care for the elderly have really become an issue for the people and the institutions of the country. For instance, the training provided by the National Institute of Social Defence and supported by the Ministry of Social Justice and Empowerment shows a commitment from the government to face that challenge. Hopefully, with the joint effort of the Ministry of Health and the Ministry of Social Justice and Empowerment, the government will maintain a constant pace, be vigilant to elder abuse, set-up official guidelines and implement strict standards in the care of elderly people.

A necessity
Properly planning and the implementation of a public health policy regarding support for the elderly has today become a necessity: the recognition of the early symptoms of dementia, patterns of interventions, research on the diseases, drug and non-drug therapies, infrastructures, professional practices, home caregivers trainings…

This is the challenge for developing countries, if they want to avoid, in the coming years, the increase in the number of sick elderly persons and severe cases due to insufficient early detection and solutions provided at an affordable cost.

The author is an AARDSI member and a clinical psychologist in France.

Saturday, September 20, 2008

ARDSI 2008, XIV conference : Dementia Care and Research : a roadmap for India 27-28 Sept. 2008


Indian Institute of Science, BANGALORE

http://www.dementiabangalore.com/8AnnualMeet/Programme.aspx

  • Clinical aspects of Dementia
  • Advances in treatment of Dementia
  • Genetics of Dementia
  • Mild cognitive impairment
  • Early diagnosis of Dementia
  • Community Care & Services
  • Rehabilitation
  • Training & Research
  • Medico legal and social aspects of Dementia
  • Networking & Advocacy

Programme


Date: 27/09/2008 -
Hall 1: For Clinicians - Convener - Dr.Ratnavalli E

Time Program
9.00-10.30 AM

9.00-9.20 A) Introduction to the conference

1) Dementia - An Emerging Public Health Problem Dr.J Roy



9.20-10.30 B) Session 1 - Symposia

Clinical aspects of dementia
9.25-9.50 1) Approach to dementia Ratnavalli E
9.50-10.15 2) Differential Diagnosis Suvarna A
10.15-10.30 3) Q & D



10.30.-11.10 C) Plenary Carol Brayne

1) From Biology to Policy- Lessons from long duration

2) Epidemological studies on Ageing



11.10-11.30 TEA



11.30- 1.00 D) Session 2 - Symposia

Diagnosis of dementia
11.30-11.55 1) Higher mental function assessment in the clinic Nehru R
11.55-12.20 2) Neuropsychological testing dementia diagnosis Dutt A
12.20-12.45 3) Neuroimaging in dementia Ravi Shankar
12.45-1.00 4) Q & D



1-00-2.00 LUNCH and Poster Viewing



2.00-3.00 E) Panel

Presentation of 3 Difficult Cases - Discussion



3.00-3.15 Tea



3.15-4.30 F) Session3- Symposia

1) 10/66 or epidemiological studies in India Mathew V and Martin Prince



5.00 - 6.30 G) Inaguration
8.00 PM Dinner


Date: 28/09/2008 -
Hall 1: For Clinicians - Convener - Dr.Ratnavalli E

Time Program
8.30-10.30 Session 4- Symposia

Rx of Dementia
8.30-8.55 1) Drug RX of dementia Mathew V
8.55-9.20 2) Rx of BPSD Srikala
9.20-9.45 3) Emerging therapies Manjari T
9.45-10.10 4) Non pharmacological interventions Nilanjana M
10.10-10.30 5) Q & D



10.30-10.45 Tea



10.45-11.25 Plenary session 2

Developing a National Strategy - Experiences from a Small Island Sube Banerjee



11.25-1.00 Session 5- Symposia

MCI/Biomarkers
11.25-11.50 1) MCI Pinto C
11.50-12.15 2) Towards an Early Diagnosis Ralph Martin
12.15-12.40 3) Genetics of Dementia O.Mukherjee
12.40-1.00 4) Q & D



1.00-1.50 LUNCH



1.50-2.50 For Awards

1) Platform presentations



2.50-3.50 Panel discussion

1) Difficult cases - Problems in Management Ravi Nehru, Shaji, Mathew, Pinto



3.50-4.05 Tea



4.05-5.00 Session6- Symposia

Medicolegal issues in Dementia

1) Presentation & Interactive session Mr.Shiv Kumar



5.00-5.30 Valedictory function





Date: 27/09/2008 -
Hall 2: For Caregivers - Convener - Dr.Srikala Bharath

Time Program



9.00-9.20 common session in Hall 1



9.30-10.30 B) Session 1 - Panel Discussion

Difficulties in consultation process
9.30-9.45 1) Recognizing early symptoms and seeking help Murali Mohan
9.45-10.00 2) Issues in disclosure of diagnosis P.T.Sivakumar
10.00-10.15 3) Medical treatment of dementia S.Shaji
10.15-10.30 4) Sharing of Experience by care givers



10.30.-11.10 C) Plenary session

Common session in Hall 1



11.10-11.30 TEA



11.30- 1.00 D) Session 2 - Symposia

Dementia care services - Developed and developing countries
11.25-11.55 1) Dementia care services in developed countries Frank Schappe
11.55-12.20 2) Specialized services for dementia care - Indian Scenario Murali T
12.20-12.45 3) Home based care - Indian Scenario Radha Murthy
12.45-1.00 4) Discussion



1-00-2.00 LUNCH and Poster Viewing



2.00-3.00 E) Session 3 - Workshop

Cognitive & Behavioural approaches in dementia care Anand



3.00-3.15 Tea



3.15-4.30 F) Session 4 - Symposium

Coping with dementia
3.15-3.35 1) Emotional problems in caregivers Om Prakash
3.35-3.55 2) Stress Management for caregivers Seema Mehrotra
3.55-4.15 3) Cargiver's role in functional rehabilitation Krithika S
4.15-4.30 4) Discussion



Date: 28/09/2008 -
Hall 2: For Caregivers - Convener - Dr.Srikala Bharath

Time Program



9.00-10.30 Session 5 - Symposia

AYUSH Interventions in Mild cognitive impairment & Dementia
9.00-9.15 1) Yoga Therapy Hariprasad
9.15-9.30 2) Ayurveda Hemant Kumar Gupta
9.30-9.45 3) Homeopathy S Gopinadhan
9.45 - 10.00 4) Siddha Siva P
10.00-10.15 5) Unani Faculty from National Institute of Unani, Bangalore
10.15-10.30 6) Discussion



10.30-10.45 Tea



10.45-11.25 Plenary session 2

common session in Hall 1



11.25-1.00 Session 6- Symposia

Networking, Advocacy & Research
11.25-11.50 1) Advocacy& Developing resources - Role of NGO's Shailesh Mishra
11.50-12.15 2) Networking NGO's in dementia care Ali Khwaja
12.15-12.40 3) Participation in research - Tissue banking and Ethical issues S. K. Shankar
12.40-1.00 4) Discussion



1.00-1.50 LUNCH



2.00 - 3.30pm Session 7 - Workshop

Community services in Dementia Geeta Oommen & Rajini




Tea

Common session in Hall 1






Bangalore, call for an Exclusive Care Facility for Dementia. Karnataka, India.

Alzheimer’s & Related Disorders Society of India, Bangalore Chapter is a non-profit organization registered in 2006, the Centenary year of Alzheimer’s. This Chapter is affiliated to Alzheimer’s & Related Disorders Society of India (ARDSI) which has 14 chapters across the Country. The Bangalore Chapter is promoted by Nightingales Medical Trust.


Unlike other diseases, dementia affects not only the patients but devastates the families as well. It is unfortunate that Bangalore, the Pensioners Paradise of India, where over 30,000 elders are estimated to be affected by dementia, still does not have an exclusive care facility for dementia. Awareness too is lacking.



The website address for the ardsibangalore chapter is www.dementiabangalore.in

Friday, August 29, 2008

Programme for World Alzheimer’s Awareness Week 2008

ARDSI Greater Mumbai Support Group


Programme for World Alzheimer’s Awareness Week 2008




15th Sep to 21st Sep 2008


On the occasion of World Alzheimer’s Day on 21st Sep 2008 ‘Silver Inning Foundation’ in

Association with ‘ARDSI Greater Mumbai Support Group’ has planned one week

Programme to create awareness about Dementia and Alzheimer’s in city of Mumbai.


Mon 15th – Screening of Film – Burden of Love and Facilitation of Care Givers – programme for Senior Citizens at Harmony – Chief Takurdwar – 4pm to 5.30 pm – Sailesh Mishra


Tue 16th - Sensitizing Programme for Para Medical professional at Nanavati Hospital, Santacruz – 11.30am to 1 pm – Prof Parul Kibliwala


Thu 18th – Screening of WHO Film - , Talk on Dementia for Students at SVT College (SNDT) Auditorium– Juhu – 2pm to 4pm


Sat 20th – Screening of Film – Burden of Love and Sensitizing Programme for Mumbai Police Elder Helpline at H.E.L.P. Library, Fort – 3.30pm to 5.30 pm


Sun 21th – Screening of Film – Burden of Love, Talk on Dementia and Memory Camp for Senior Citizens at ‘’Abhi to Main Jawan Hoon’’ – Senior Citizen Club, Kandivali – 4pm to 6 pm


This programme is organized in association with ARDSI - Alzheimer's & Related Disorder Society of India –Mumbai Chapter , Helpage India, Harmony, H.E.L.P. Library , NAMI India, The Family Welfare Agency, ILC - India ,Shree Manav Seva Sangh, Bombay Psychiatric Society , FESCOM,IMA and AISCCON (All India Senior Citizens' Confederation).


Pls Note: This is tentative programme, subject to change.


Sailesh Mishra
Programme Co-coordinator
ARDSI -WAD 2008

Mobile:9819819145

Saturday, August 23, 2008

Invitation for Fund Raising Event for Alzheimer's Society India

Colours of Hope

Weavers Studio Invites you for an Fund Raising event for (ARDSI) Alzheimer's Related Disorder Society of India,Kolkatta chapter on occasion of World Alzheimer's Day 21st Sep 2008.
An exhibition of wide range of hand woven,hand craft garments and wide range of traditional silver jewellery.


Event Date:Thu 28th Sep to Sat 30th Sep

Time: 10am to 6.30pm

Venue:
Weavers Studio
5/1,
Anil Moitra Road,
Kolkatta
India
Tel : 24008926

Contact:
Nilanjana Maulik
Secretary
ARDSI, Kolkatta
ardsikolkata@yahoo.co.in


ARDSI National Office,
P.B. NO. 53,
Guruvayoor Road,
Kunnamkulam - 680 503,
Thrissur Dist, Kerala, India.
Tel.04885 223801
Fax: 04885-224817
Email: alzheimr@md2.vsnl.net.in
Website: www.alzheimer-india.org

Monday, August 18, 2008

World Alzheimer's Day INDIA 2008 : Your Support needed


Dementia is a progressive brain dysfunction (in Latin 'dementia' means irrationality), which results in a restriction of daily activities and in most cases leads in the long term to the need for care. Many diseases can result in dementia, the most common one being Alzheimer's Diseases.

In our society of longer lifetime the probability of suffering from dementia increases with advancing age. Dementia predominantly occurs in the second half of our life, often after the age of 65 - some experts think that this is the 'price society has to pay' for our higher life expectancy and therefore the term 'dementia' activates similar fears and repression mechanisms as 'cancer' or 'AIDS'.



The frequency of dementia increases with rising age from less than 2 % for the 65-69-year-olds, to 5 % for the 75-79 year-olds and to more than 20 % for the 85-89 year-olds. Every third person over 90 years of age suffers from moderate or severe dementia (Bickel, Psycho 1996, 4-8). About half of those affected by dementia suffer from Alzheimer's disease.



Dementia is a global problem and is expected to reach epidemic proportion in Asia in the next decade. Compared to many other countries, India is yet to go a long way in providing adequate care and support to persons suffering from dementia. It’s time for immediate action by all of us – the public, medical professionals, service providers and policy makers to join hands in finding tangible solutions to deal with this emerging epidemic.

There is no cure and treatment, but there are some drugs and some therapies which if taken under trained and certified professional then can help to stabilize the patient.


In India we need to create more Awareness for this disease and Stigma attached to it should be removed. There is need for trained Dementia care givers, Dementia management services and R& D. There is need for Support groups, Day care center, and respite care. There is need for psycho - social approach an holistic view for Dementia.


To address this problem ARDSI (Alzheimer's & Related Disorder Society of India ) has organised one week programme in different part of India .


In Mumbai we have programme from Mon15th Sep 2008 to Sun 21st Sep 2008.This programme is held in association with ‘Silver Inning Foundation’.


We would request your organisation to support us in this event and help to create mass awareness for Alzheimer’s which includes Talks, Release of Documentary of Jaya Bachchan,Memory Camps etc. You can reply to this mail and tell us how you can support and particiapte.



Lets we all work united for our ''Fight Against Dementia'' - disease of 21st Century.

''No time to loose'' - World Alzheimer’s Day 2008

Remember Those Who Cannot Remember



Thks and hoping to receive positive response.

Founder President - Silver Innings Foundation,A dedicated Organisation for Elders and their Family Members
Founder – ARDSI, Greater Mumbai Support Group
Advisor - Society for Serving Seniors
Managing Committee Member - ARDSI, Mumbai Chapter
Website : www.silverinnings.com
Blog: http://peopleforsocialcause.blogspot.com/ ; http://silverinnings.blogspot...com/

Forget yourself for others, and others will never forget you.

Wednesday, August 13, 2008

First time in India a short term course in Gerontology


CERTIFICATE COURSE IN GERONTOLOGY


An initiative by Silver Inning Foundation in association with Ramnarain Ruia College


With decline in fertility and mortality rates accompanied by an improvement in child survival and better health care and increased life expectancy, a significant feature of demographic change is the progressive increase in the number of elderly persons in India .


According to census 2001 population of people above age 60 years and above was 7.5% of Total population. According to UN by 2050, nearly 20% of India ’s population will comprise of people over the age of 60 years. So there is urgent need to address the issues of Elderly and to empower Elderly and the society on whole with various aspects of Ageing.


Department of Psychology at Ramnarain Ruia College , Mumbai in Association with Silver Inning Foundation announces CERTIFICATE COURSE IN GERONTOLOGY (A course to work with Elder people).


Objective:


· To prepare trained cadre of people to work with Elderly and to provide support system for their families

· To learn about basic skills, knowledge and attitudes for working with elderly

  • To strengthen intergenerational relations through knowledge and understanding
  • To Improve Quality of Life of Elderly

Methodology: Theory and Field visits

Duration: 4 months

Days: 2 days a week

Time: Evening Batch

Eligibility: Minimum H.S.C / X11

Total course Fees: Rs.4000/-

Tentative date of start: Monday 1st September 2008


Venue of Course:

Department of Psychology

3rd Floor

Ramnarain Ruia College

L. Nappo Road,

Matunga,

Mumbai 400 019,

India

Hurry and apply soon only 30 seats.

FOR FURTHER DETAILS AND APPLICATION CONATCT:

Prof. Sangeeta Rao (Clinical Psychologist) -HOD Department of Psychology R.Ruia College

Email:sangeetadnyanesh123@rediffmail.com

Mobile: 9323390259

Amruta Lovekar - Director Programme and Services, Silver Inning Foundation

Email : amruta76@yahoo.com

Mobile: 9833136536

Silver Innings: info@silverinnings.com

Help Desk: 9987104233

Forms Available:

Monday to Friday – 10am to 12 noon

Department of Psychology

Ramnarain Ruia College

About Ramnarain College

The Ramnarain Ruia College of Arts & Science was established in June 1937.This College is affiliated to University of Mumbai and conducts courses at Undergraduate and Graduate (Postgraduate) level. Today, Ruia College enjoys the reputation of being one of the finest institutions of higher learning in the country.

About Silver Innings Foundation

Silver Inning Foundation is NGO registered under Society Registration Act of 1860 vide registration number 1300/2008/GBBSD dated 14/07/2008.

Saturday, July 12, 2008

A Burden of Love, an indian movie on Alzheimer's Disease.



Alzheimer's disease -- A dark world of ignorance, apathy

SUMEDHA RAIKAR-MHATRE


Copyright © 1999 Indian Express Newspapers (Bombay) Ltd.


OCTOBER 31: A senior official of the Union Health Ministry, when asked for information on Alzheimer's disease, replied, ``Sorry, we do not have information on this eczema.'' The incident indicates the extent of apathy and ignorance about the disease even in the government.

Filmmaker Bramhanand Singh attempts to remove such misconceptions about Alzheimer's disease in a 45-minute documentary titled A Burden of Love which will be screened at the Max Mueller Bhavan on November 2 as part of the ongoing Ageing In India theme. The film screening, along with other complimentary events, commemorates the International Year of the Elderly.

A Burden of Love is a study of the nature of Alzheimer's disease, which starts with memory loss and progresses to various disabilities like loss of body control and abnormal behaviour for persons above 60. Singh and co-director Priti Chandriani have zeroed in on six-Alzheimer's patients, ranging from the acutely-affected to the borderline cases.


The documentary is woven into interviews of patients, their relatives/caretakers and medical professionals who expose the severe lack of definite cure for the dreaded illness. While over three million people suffer from this disease in India, there is hardly any research undertaken to understand its initial symptoms.
.......

to read more, see the link :
http://www.indianexpress.com/res/web/pIe/ie/daily/19991101/ige01073.html