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Saturday, December 29, 2012

CALL FOR PAPERS from Alzheimers Wing Imphal, West Bengal, INDIA.


The Editorial team of Journal of AGEING & ALZHEIMER’S DISEASE is an open access, peer reviewed journal which covers both basic and clinical aspects of research into aging, age-related disorders, the general health of elderly people, and how to care for them. 

All aspects of research into the aging process are of interest, at the molecular, cellular and organismal levels, Neurological, Trauma , Economy, Mental Health , geriatrics, Spiritual, Diabetes , Heart disease and mediating factors. 

Age-related disorders and conditions such as dementia and frailty, aspects related to nutrition, but also rehabilitation strategies and how to best care for people as they age, are all of interest.

Prospective authors are invited to submit original and unpublished contributions for ageing. 

All submitted contributions must be full draft papers, written in English and limited to 1500 words.
When submitting your draft paper, include a cover page with a short abstract, indicate the desired and intended scope as well as the authors’ name, title, affiliation and the address, phone and fax numbers and e-mail address of the contact author. 

Papers should fit into the following theme areas: 

1.Improving Health and Living Conditions for Elderly Populations

2.Alzheimer’s Treatment and Care at a Crossroads: Pursuing All Avenues to
Provide Relief

3 .Diagnostic challenges in dementia : Neurology

4. Healthy Aging & Clinical Care in the Elderly

5.Dementia, Mental Health and Neurological Co-morbidities

6.Economic Aspects of Population Aging in China and India

7.Family Experiences in the Journey Through Dementia Diagnosis and Care

8. Neurological Disorders: Public Health Challenges

9. Environmental Factors in the Development of Dementia

10 Arthritis - Society for Women’s Health

11. Neurological disorder problems and prospects women.

12. Post traumatic stress disorder social problems.

13. Depression and aging: a look to the future

14. Economic ‘Burden’ of Ageing and the Prospect of Intergenerational Conflict
15 . Geriatrics care elderly citizens
16. Spritual and Yoga
17. Diabeties and Heart Disease of Ageing etc.
Processing Speed: Editorial decision less than 3 Months , publication in average 

3 Months after acceptance. Deadline of Submission 15 January 2013
Please send us:
Cell No: +918974024889/+919865377484

Smt. R.K. Nayansana Devi
Chief Editor & Chairperson,
Manipur State Social Welfare Board 
Govt. of Manipur.

Dr. K. Shantibala Devi
Scientific & Chief Patron Editoral Team
National Alliance for Elder’s People
Livelihood ResearAdvocacy & Chronic 
Disease of India

H. Sanamatum Singh
Editor & General Secretary
ARDSI, Manipur Chapter 

The contributions and the oral presentations are considered to be awarded a Best Paper Award by the Editorial Team.

Elder Care Training in Hindi & Marathi at LT college of Nursing, Mumbai, 2013.

Elder Care Training : LT college of Nursing, Mumbai in association with Silver Inning Foundation and supported by BHARARI (women NGO) & ARDSI Greater Mumbai chapter, has organized Half day Training Program for Care Giver of Elderly at Mira road (near Mumbai) on Sat 12th Jan 2013 for Domestic worker, Housewife, Unemployed youth. 
Training in Hindi & Marathi. Only 30 Seats. 

Contact at: 

Training course in Gerontology ' in Pune in January 2013.

‎' UN-INIA training course in Gerontology ' in Pune Jan 2013 : ILC-I is happy to announce a seven days’ training programme on the social and economic issues of ageing organized by it in collaboration with the United Nations International Institute on Ageing,(UN INIA), Malta and the Dr. D. Y. Patil Vidyapeeth, Pune (Deemed University). 

This is a prestigious UN certified course specifically customized and tailored as appropriate to, and rooted in, the socio-economic conditions and needs of the country. Two renowned international and two acclaimed national gerontologists would be the faculty for this full time course. 

The UN certificates signed by the Director of UN INIA, Hon. President, ILC-I and the Vice Chancellor, Dr. D. Y. Patil Vidyapeeth will be given at the end of the course to the candidates who complete the course. 

The training programme will be held in the premises of the Dr. D. Y. Patil Vidyapeeth, Pune (Deemed University), Sant Tukaram Nagar, Pimpri, Pune-411018 from the 19th of January 2013 to the 25th of January 2013. This is a full time course from 9 am to 5 pm. 

The registration fee for this course is Rs. 3000/- for the full period inclusive of training materials, the tuition fees, refreshments and lunch. (Outstation participants are requested to make their own accommodation arrangements. ILC-I would be happy to provide any further details in this regard). 

Contact : The Executive Director, International Longevity Centre- India (ILC-I) , 
CASP Bhavan, Pashan-Baner Link Road, Pashan, Pune- 411021 . Maharashtra. 
Tel no: 020-65002595 . e-mail: .

Sunday, November 18, 2012

Introduction speech of "the National Conference on Ageing" by Mrs Kumari Selja, Minister of Social Justice & Empowerment, India 2012. (excerpt)

Excerpt of the introduction speech of "the first ever National Conference on Ageing" in India, held by the newly nominated Minister of Social Justice & Empowerment, Mrs Kumari Selja:

"National Conference on Ageing Addressing the Issues and Problems of Senior Citizens" Tuesday, November 06, 2012. 

...."In order to improve the quality of life of the older persons, the Ministry of Social Justice & Empowerment is implementing a flagship scheme called the Integrated Programme for Older Persons since 1992. 

This scheme seeks to provide basic amenities like shelter, food, medical care as well as entertainment opportunities to encourage productive and active ageing. 
Under the Scheme, financial assistance up to 90% is provided to Governments/Non-Governmental Organizations/Panchayati Raj Institutions/local bodies etc. 

The assistance is provided for running and maintaining Old Age Homes, 

Day Care Centres, 

Mobile Medicare Units, 

Day Care Centres for Alzheimer's disease/dementia patients, 

Physiotherapy Clinics for older persons, 

sensitization programmes for children in schools and colleges; 

Regional Resource and Training Centres, etc. 

About 350 NGOs are being supported every year for running and maintaining around 550 projects under the Scheme. 

Keeping in view the rising cost of living, the cost norms of various projects under the Scheme are under revision. 

The demand for Caregivers for Older Persons has been increasing in the recent past. To cater to this requirement, the National Institute of Social Defence (NISD) is implementing a project called the National Initiative for the Care of the Elderly. 

The main objective is to create a pool of skilled care givers, and to enhance the capabilities of service providers in the area of old age care. 

The Institute conducts One-Year Post-Graduate Diploma Courses on Integrated Geriatric Care,
Six-Months Certificate Courses on Geriatric Care and One-Month Basic Courses on Geriatric Care. 

Besides, the Institute also collaborates with reputed institutions and organizations for running short term training programmes for caregivers.".... 


Overview of the current situation on AD and Ageing in India.

here are a few links I can give you for an overview of the current situation on AD and Ageing in India, some of our members have shared their inputs through our Facebook Discussion Group:

Some inputs through my experience in India:

- "Need for a safety net, the Hindu, India", by Hendi Lingiah

and - "About Hendi LINGIAH on making Alzheimer's Disease in India Blog."

- "The Cultural Context of India and its Impact on Dementia Care" by Swapna Kishore, India. 

- Request for a comprehensive epidemiological study on dementia in India and resulting in the implementation of a coordinated carepath in this field: 

and - "The basis of a Carepath for Dementia in India?" by Balbir Singh Rawat (former caregiver of his wife, Dehradun) 

- "Situation Analysis of the Elderly in India", June 2011. 

REPORT : "Situation Analysis of the Elderly in India", June 2011; Central Statistics Office Ministry of Statistics & Programme Implementation, Government of India. 

- Recent Conference on Ageing with inputs on the Ageing Policy in India: 
National Conference on Ageing" in India, held by the newly nominated Minister of Social Justice & Empowerment, Mrs Kumari Selja: 
"National Conference on Ageing Addressing the Issues and Problems of Senior Citizens" Tuesday, November 06, 2012. 

Population Ageing in India:"Living Arrangements of Elderly in India", Report 2012.

‎"Living Arrangements of Elderly in India, Policy and Programmatic Implications",
"Building knowledge base on Population Ageing in India, Working Paper: 7"

Institute for Social and Economic Change, Bangalore
United Nations Population Fund, New Delhi
Institute of Economic Growth, Delhi
September 2012.



Thursday, November 1, 2012

Policies that facilitate the elderly in India.

Care 2 Care Foundation. 

  • Policies that facilitate the elderly
    • National Policy on Older Persons
    • National council for Older persona
    • Old Age & Income Security
    • Old Age Pension for General Public
    • National Old Age Pension Scheme (NOAP)
    • Widow Pension
    • Old aged Health Care
    • Management of Old Age Homes
    • Employment exchange for aged persons
  • Findings
    • Physically Immobile aged
    • The chronically ill aged
    • Aged living alone, widows and widowers
    • Without children or anyone to look after
    • Who's children are abroad or outside the city
    • Aged with lack of family support due to any reason

Video: "Dementia: Myths versus Realities", by Simon Tan, adjunct clinical instructor of neurology at the Stanford University Medical School.

Video: "In this program from the Stanford University Medical Center, Simon Tan, adjunct clinical instructor of neurology at the Stanford University Medical School, discusses the why dementia is often misunderstood in society and what the common causes, symptoms and treatment options are for those living with the condition."

Sunday, October 28, 2012

Saturday, October 27, 2012

Video: "Seven months after mother’s death: updates and musings", by Swapna Kishore, October 2012.

Swapna Writes Blog, "A dementia caregiver in India shares experiences and insights about life", October 27,2012.

"It is seven months since my mother died, and I sometimes get queries on how I am doing, so I’m sharing an update. My mother’s death meant I lost the person my life had been revolving around for the last several years. 

My typical day’s structure, necessary for caregiving, became redundant when she died. My sense of identity changed. My role, responsibility and activities needed a rethink. Given the sweeping change caused by her death, I think I’m handling my situation well enough."...

..." Different people must be using different ways to handle readjustments and redefinition of life. So far it seems to me that, for me, there shall be no dramatic waking up one morning to find I’m all energetic and “new”; I am traveling on a slow and gentle curve, turning just a bit with each unit of work I do and each neatened up idea I put down and then set aside. And somewhere down the line, I would have cleared up enough mental and emotional space to get the time and energy to explore things and experiment with directions I have deferred earlier. Let’s see what life uncovers". 

A Caregiver from India describes her experiences of supporting her mother through late stage dementia: 

Silver Innings, Mumbai: List of Organizations Working for Senior Citizens in India.

Silver Innings - Blog for Senior Citizens: List of Organizations Working for Senior Citizens ...: JAC (Joint Action Committee of Senior Citizens Organizations   2012) Members  1)      AISCCON 2)      International Longevity ...

List of Organizations Working for Senior Citizens / Ageing in India , Oct 2012.

"There are total 91 Organisations , please also help us to collect their contact details and also to correct and add to the list . 

Pls note this is latest updated list as on 27th Oct 2012 , we have complied the info of several years and whole idea is to take our agenda ahead of Disseminating Information and Knowldeghe to Empower our Elders , Government , International Agency and Society at Large."

Saturday, October 6, 2012

"Dementia in Hindi", by Swapna Kishore, India.

‎"The background: Over a year ago I started worrying about the paucity of online (and print) material in Indian languages for dementia caregivers. This “worry” was active enough for me to wonder what I could do about the lack of material. 

My concern was spurred after someone in Madhya Pradesh contacted me – he was using Internet on his mobile and wanted material in Hindi so that he and his family
could better support an early-onset dementia patient. 

I helped him through phone calls and by sending across some material I had. 

However, I felt concerned about how difficult things must be for someone like him who wanted support. Around July/ August last year I started exploring options for creating Hindi material myself. 

A few months later I made my first Hindi video and placed it on youtube, and in December I shared my thoughts and experiments in a 4-part blog entry (For part 1 of this series, click here: Adventures in Hindi Part 1)."...

...."they may not have considered whether the available material is:
  • understandable and usable by audiences in India (fitting into the cultural context)
  • in languages that people can read/ understand )
  • with links in forums such people can access )
  • accessible on the type of online platforms such audiences use )
  • accessible to people not in metros )
  • accessible to people who don’t have online access/ find it expensive)
I could expand the list into a much longer one, but I’m sure you get the point :)
So, in my opinion, there is not enough suitable material in India given the diversity of our people, the sheer number of languages, the geographical and economic spread, the enormous awareness gap to bridge and what not. The gap between what is needed and what is available seems huge to me.
And here is my request to you, whether you are a volunteer or a caregiver who has experiences to share: if you are comfortable enough to create material in an Indian language — whether just talking of your experience, or sharing some structured material or some data — please do consider it. The online space is open and waiting for you.
Maybe the material you create or the video you make will not go viral. There may be no award to be won. There may be no appreciation/ brownie points from peers. But the one person who reaches your material could be someone whose life will be made different by reading or hearing what you have to say.
Main links referred to in this post


Friday, October 5, 2012

Characterizing Cognitive Deficits and Dementia in an Aging Urban Population in India. 2012.

"In this paper, we describe the development of a community-based memory clinic in urban India, including linguistic and cultural factors and present detailed results, including diagnostic characterization, on 194 subjects with various stages of cognitive deficits.

Our findings support the feasibility of developing a memory clinic in a public hospital and successful use of research diagnostic criteria to categorize cognitive deficits observed in this population, which may be used to inform the development of other such clinics."...

"Good News for Dementia Care: Caregiver Interventions Reduce Behavioral Symptoms in People With Dementia and Family Distress".

..."Clinical guidelines from numerous medical organizations for managing behavioral symptoms recommend nonpharmacologic approaches, including caregiver supportive interventions, as first-line treatment (8). 

Interventions for caregivers may include skills training, education, activity planning, environmental redesign, and social and emotional support, tested either singly or in combination. 

However, nonpharmacologic approaches are not widely implemented, largely because of lack of provider knowledge concerning their efficacy and limitations imposed by reimbursement mechanisms."

...."Two key conclusions can be drawn from this study. First, the meta-analysis provides the strongest evidence to date that caregiver interventions have a twofold advantage: they reduce distress in caregivers, and they reduce behavioral symptoms in individuals with dementia. 

This quantitative synthesis of high-quality studies provides confirmation that helping families is an important vehicle for helping patients. As such, these interventions should be central to the clinical management of behavioral symptoms. 

The primary challenge remains how to widely implement and financially sustain delivery of these interventions to address the urgent need of families."  

Brodaty H et Arasaratnam C. Meta-analysis of nonpharmacological interventions for neuropsychiatric symptoms of dementia. Am J Psychiatry 2012; 169(9): 946-953. 1er Septembre Gitlin LN. Good News for Dementia Care: Caregiver Interventions Reduce Behavioral Symptoms in People With Dementia and Family Distress. Am J Psychiatry 2012; 169(9): 894-897. 1er Septembre 2012. 


Friday, September 28, 2012

Video: An introduction to the brain - Alzheimer's Society dementia brain video

This film gives a overview of the structure and function of the brain. 

"The human brain is incredibly complex. It controls everything our body does, from coordinating our movements and our speech, to keeping our heart beating, to storing our memories. 

Despite all this there is still a lot we don't know and much of the brain's inner workings are still a mystery. 

Tuesday, September 18, 2012

Programme of ARDSI Manipur Chapter for World Alzheimer's Day 2012, India.

World Alzheimer's Day Observance Programme at Jawaharlal Neharu Institute of Medical Sciences Imphal, at 9.30 am. 

                              Double click on the picture to enlarge it

Sunday, September 16, 2012

Photos: World Alzheimer's Day Hyderabad, Memory Walk, India 2012. (2)

{Cleo Fernandes}, all rights reserved 

"Living with Dementia, awareness, images, stigma, quality of life: a perspective from India", Swapna Kishore, India.

"Living with Dementia, awareness, images, stigma, quality of life: a perspective from India" by Swapna Kishore on Swapna Writes on SEPTEMBER 12, 2012. 

"But where, oh where, is the voice of persons of dementia in India? Where is the modality to diagnose people early enough, to understand their experiences and needs directly from them (as relevant in the Indian context), and then include their feedback in policy or while designing support systems?" 

..."My primary arena of concern is India.
I think we are at a relatively early point in developing our dementia approach and strategy.
In a connected world, while we need to be careful of not falling for a one-size-fits-all approach, we nevertheless have the advantage of learning from the experience of others. 

When we look at countries far ahead of us in dementia awareness, we must see how they improved awareness and also study what we need to be careful about. 

The fact that there is a stigma attached to an Alzheimer’s diagnosis in some countries can be a cautionary tale for us in India."...


"Applying available dementia/ caregiving material to the Indian context", by Swapna Kishore, India.

"Most dementia and caregiving material available (websites, books, DVDs, videos, presentations) assumes a social and cultural context different from what we find in India, which means that anyone using that to design systems and supports fo
r India needs to adjust the advice given to take the Indian setting into account.

Briefly, books, pamphlets, write-ups available in English usually assume an American/ European/ Australian culture, where people are more likely to live independently (compared to India), where they openly and without hesitation make choices that allow them to “have a life”, discuss their desires and needs, and have their privacy respected. 

Specialized tools are available, and information on dementia is widespread (compared to India). The role of support persons and caregivers is recognized and respected. 

The environment in India differs along these axes in varying degrees. We must therefore re-interpret some lessons/ suggestions, and explore alternate means to meet the intent. This is applicable to caregivers, counselors, support groups, and NGOs.

Below are my observations and thoughts on differences and possible ways to re-apply the underlying ideas in our context. Please use the comments area to share your thoughts and data on the topic."...


"The Cultural Context of India and its Impact on Dementia Care" by Swapna Kishore, India.

"On this page, I am giving my impressions of how the characteristics of the society and setting in India impacts the dementia patient diagnosis and status, as well as caregiver role.

Indian culture and how it impacts patients and caregivers
General suggestions
Suggestions for caregivers"....


Saturday, September 8, 2012

Photo of 'Dementia Care workshop', September 2012, Mumbai.

Two very eventful days at SNDT juhu, our two day 'Dementia Care workshop'. 
In the picture Echoing Healthy Ageing trainers with students and teachers. 
"We are truly overwhelmed by 10/10 ratings given to us by students."    

Trainers: Sailesh MishraAmrita Patil-PimpaleKrishna MistryAngel Nagaonkar and Dhanalaxmi Rao.

                                Double click on the picture to enlarge it

Conference: 'Meaningful Activities For Person With Dementia And Alzheimer's', 18th Sep 2012, by Amrita Patil-Pimpale of Echoing Healthy Ageing (EHA). Mumbai.

For Family Care givers : HEALTH EDUCATION LIBRARY FOR PEOPLE (HELP) Talk 'Meaningful Activities For Person With Dementia And Alzheimer's' on Tue 18th Sep 2012, 04:00PM by Amrita Patil-Pimpale of Echoing Healthy Ageing (EHA): World Alzheimer's Month activity of Alzheimer’s and Related Disorders Society of India Greater Mumbai Chapter. 

Call and Register Tel: 65952393/ 65952394/ 22061101/ 22031133. 
Timings; Monday - Saturday, 10.00 am - 6.30 pm. 
Add : HELP , 206, Dr.D.N.Road,National Insurance Building, Ground Floor,Excelsior Business Center, Near Excelsior Cinema,Fort, Mumbai - 400 001 

Link :  

Tuesday, September 4, 2012

Video from NDTV: "Old Age is a Curse in India" (Hindi version)

NDTV video (hindi version): Truth or sensational news? (Some interventions only are in english)

World Alzheimer's Day Hyderabad, India 2012. (1)

                            Double click on the pictures to enlarge them

The theme of World Alzheimer?s Day 2012 is "Dementia: Living Together?" The Memory Walk 2012 is Hyderabad's largest public event to raise awareness and funds for Dementia care, support and research ? and it calls on people of all ages to take action in the fight. Research says that it is possible to keep our brain healthy and reduce the risk of dementia by staying physically active. So please join us in the walk in ? Remembering those who cannot remember?


World Alzheimer's Month 2012, Navi Mumbai Programme, India.

Navi Mumbai ( New Mumbai) Padmashree Dr. D.Y.Patil Hospital & Medical Research Center activities for World Alzheimer’s Month 2012 : 

1) Inaugural function will be held at 4.30 pm on Thursday the 6th September,2012 at the First Floor Auditorium of 

Padmashree Dr.D.Y.Patil Hospital and Medical Research Center;

2) Caregivers Meeting World Alzheimer’s Day Theme is ”Dementia Living Together” at 4.30 pm

 on Thursday 13th September 2012 at Jyestha Nagarik Bhavan, Plot No.7C,,Sector 12, Behind Gaondevi Mandir, Nerul (W), Nav Mumbai 400 706;

3) Musical Program of Old Songs followed by a lecture on preventive steps to be taken on Alzheimer and Dementia at 3.00 pm on Friday, the 21st September, 2012 at Jyeshth Nagarik Bhavan, Nerul;

4) Memory Walk 2012 “ Dementia Living Together”;

5) General Public Awareness Session for Consortium of Colleges of Navi Mumbai jointly organised with Senior Citizens Associations*;

6) Memory Screening Camp*;

7) Outing for persons with Dementia and their family members*

Contact : Mukund Koranne

Sunday, September 2, 2012

Free Medical Consultation Kochi by HelpAge India.

HelpAge India, Kerala:

                               Double click on the picture to enlarge

World Alzheimer's Day 2012 India: Mumbai's Programme.

World Alzheimer's Awareness Month 2012 Mumbai, Theme for World Alzheimer's Month™ 2012: Fighting Stigma : Alzheimer’s and Related Disorders Society of India ,Greater Mumbai Chapter in association with Silver Inning Foundation '1298 Senior Citizens Helpline' ( Ziqitza Health Care Limited) & Echoing Healthy Ageing (EHA).

                       Double click to enlarge the picture

Wednesday, August 22, 2012

World Alzheimer's Day India Poster, 2012.

World Alzheimer's Day indian poster from Ardsi Kkm (Kunnamkulam, Kerala).

To be displayed in private practices/clinics/geriatric wards...

                             Double click on the picture to enlarge it

Brain donation in India, by Swapna Kishore, Bangalore Mirror, 18/08/2012.

"“I don’t want anything of me to go to a waste,” mother would tell Swapna repeatedly. “Donate all that you can of me and the remaining give it to a medical college for research.” Swapna didn’t find the request bizarre; instead it became her mission. 

Mother relentlessly gathered all information about ‘donation’ for as long as Swapna can remember. Ironically, even after developing dementia, she di

dn’t forget. When the family moved to Bangalore from Delhi in 2004, even though the move was traumatic for her, just three days after moving she asked Swapna: “Where is the hospital for donation here?” Swapna found out."...

..."But what I saw proved that there’s no need to be apprehensive. Mother was treated with utmost respect. Everybody involved, the staff and the doctors, treated her gently and with dignity. It was in sharp contrast to what I had experienced when my father had died over a decade earlier. 

I had performed the last rites. And I have had firsthand experience of everybody haggling for money right from the ward boys to the poojaris at the ghat. It felt dirty. But, my mother's donation process was peaceful and dignified. I strongly feel that my mother was right all along in donating her brain and body instead of wasting it by consigning it to flames.”"... 

"How can the medical community succeed in finding a cure for dementia, Alzheimer’s and other such ailments when there aren’t enough brain tissues available for study and research? Showing the way is a dementia patient who donated her brain to India’s only brain bank".