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Saturday, November 15, 2014

Presentation by Swapna Kishore 'A caregiver perspective on issues and challenges', September 6th at GERON 2014 (10th Annual National Conference of the Indian Association for Geriatric Mental Health), Kolkata.

Tuesday, September 16, 2014

"Helping professionals appreciate the realities of dementia home care" by Swapna Kishore, India.

"I began putting together a note on the context of dementia home care in India. It took some pruning and prioritizing to and redrafting to create a short, compact version. I uploaded this note on at Dementia Home Care: Context and Challenges in India.
Initially I saw the note as something that volunteers and professionals may find useful to help home caregivers through relevant and practical advice. But later I realized that the note can also help caregivers. It could be used to get an idea of their role and how tough it may be. It could also help them understand what advisers may be assuming and know what they need to clarify/ explain in order to get pertinent advice."...

Video : Dementia in 101 Seconds (english version)

The World Alzheimer Report 2014

The World Alzheimer Report 2014 Dementia and Risk Reduction: An analysis of protective and modifiable factors. 

available from 17th September onward:

Infographic: "Living with the repetitive symptoms of dementia"

"visual infographic that captures the nature of repetitive symptoms and their impact on the lives of people living with dementia".

Master Class 1: I've Just Been Diagnosed with Dementia. What's Next?

'A caregiver perspective on issues and challenges' by Swapna Kishore, India.

Presentation by Swapna Kishore of Dementia Care Note :  'A caregiver perspective on issues and challenges', September 6th at GERON 2014 (10th Annual National Conference of the Indian Association for Geriatric Mental Health), Kolkata :

Sunday, August 17, 2014

Indian Association of Palliative Care : Consensus Position Statement

"End of Life Care Policy for the Dying: Consensus Position
Statement of Indian Association of Palliative Care "
" Indian Association of Palliative care (IAPC) takes the position that access to palliative and end of life care (EOLC) is a human right. 

Therefore everyone with a life limiting illness has a right to a life free from pain, symptoms and distress; psychosocial and spiritual, and has the right to a dignified life that includes the process of death.

It is IAPC’s pledge and resolve to facilitate the process and calls upon the Government of India to create and implement suitable and effective legislation and policies for:

• Improvement in access to palliative care services and medications
• Education of professionals and the public
• The enacting of unambiguous laws related to issues in EOLC
• Encouragement of participation of the community in care
• Monitoring and ensuring standards of care and
• Provision of continued supportive measures for the families/caregivers throughout the illness trajectory and even after death." ...

Indian Journal of Palliative Care:

Monday, August 4, 2014

NEW DELHI 2014 : 17th Asia Pacific Regional conference of Alzheimer’s Disease International

17th Asia Pacific Regional conference of Alzheimer’s Disease International shall be held at the India Habitat Centre, New Delhi on 7-9th Nov. 2014

"An opportunity to get exposed to the world of Alzheimer's disease. Do participate, you might be able to help out someone who is suffering in your circle of friends and relatives.

Book your dates now to avoid disappointment. First time in India. an international meet on this subject..."

Follow on Facebook  at :

Wednesday, July 30, 2014


Emotional Short Film - Call Bell (Respect Your Parents)
on Neglect of Elderly people (english subtitles)

Tuesday, July 22, 2014

Elderly Care in PUNE

"H.O.P.E offers home assistance for 350 Senior Citizens in 10 different area clubs. Daily visits, monthly gatherings, home assistance is provided to individual cases, Health camps organized, assistance provide to prepare senior citizens cards etc."

Elder Abuse in India : Report by Agewell Foundation.

Most elderly people face shabby treatment from family: Report

"One out of every three elderly persons in the state face mistreatment from their family members. A study conducted by the Agewell foundation, respondents asserted that due to housing and property issues at old age time, they face harassment from the their children." ...

Tuesday, July 1, 2014

10th Annual National Conference of the Indian Association for Geriatric, KOLKATA.

10th Annual National Conference of the Indian Association for Geriatric Mental Health
Dates 6th & 7th September, 2014 by Indian Association for Geriatric Mental Health (IAGMH) with Gautam Saha, Mathew Varghese, Shaji Ks, Sarvada Chandra Tiwari, Arabinda Brahma, Prabir Paul, Swapna Kishore, Debjani Bandyopadhyaya. 


Monday, June 16, 2014

10 tips for communication in Alzheimer's Disease

Understanding Dementia MOOC Photo: 

By 2050 71% of people with dementia will live in low and middle income countries. We need to ensure that people with dementia and their caregivers across the world are properly supported. Take a look at our report which looks closer at the shape of global dementia care -

link :

"The pleasures, and pinpricks, of life in a home for seniors" INDIA - The Hindu

"So this leads to the question I am often asked: am I completely happy here? 
In short, yes. I enjoy the easy camaraderie amongst my fellow-residents. It is indeed a pleasant experience to be with people of your own generation. 
There is no embarrassment about partial deafness, limping legs or bending back. 
One may happily confess to one’s dentures. Away from the eyes of censuring relatives, we find most of us shedding our inhibitions and participating in activities with gusto.
We may burst into an old Tamil or Hindi film song. Indeed, we stage small plays, or a small group may organise a religious activity.
My husband, given to more solitary pursuits, looks at the new liberated me with wonder and continues with his task of editing our monthly newsletter." ... 

The pleasures, and pinpricks, of life in a home for seniors - The Hindu

Sunday, May 25, 2014

Dementia in Hindi : "Is dementia something new?"

Article by Swapna Kishore in Hindi : "Is dementia something new?"


Friday, May 23, 2014



Joining hands with Kerala Govt., ARDSI is heading towards framing Kerala Perspective on Dementia. As a first step, we will be conducting a One-day Workshop with Dementia Experts in the second Week of June. Those dementia experts interested to be part of this initiative, please write to us

Monday, May 19, 2014

Wednesday, May 7, 2014

Dementia and caregiving in India : A national priority ?

From Swapna Writes Blog: ... " In a country like India, struggling with multiple basic problems in areas like health, education, law and order, infrastructure, etcetera, I have no basis to expect that dementia will be made a “national priority”.
Surely child mortality, primary health care, basic sanitation, farmer support, poverty eradication, reducing school drop outs, and many, many basic causes are already contending for, and deserve more national attention, funds, and priority." [ ...]
"We forget how much foundational work needs to be done in India before we can afford lofty dreams. We forget that, in India, we have yet to establish a foundational understanding of dementia, and our overall quality of life and social support and welfare schemes is not good. 

How can we justify aiming for a quality of life of dementia-affected families that is grander than what is normally found around us?" [...]
"Awareness is so poor that there is no way to tap the bulk of actual, hands-on caregivers. Besides, caregivers come in various stripes; the ones who most need help are not visible, not tapped, not participating in most dialogues. 
Patients who need the most help are the ones locked up in houses because of social stigma, or who remain undiagnosed or are labelled as crazy and shunned. 
So where are their voices, their concerns, their perspectives on what they need most and fastest? Where can we find persons diagnosed early enough to have insight into their dementia who may share their realities so that we can know what “friendliness” means to someone who actually has dementia? 
Don’t their opinions matter?"...

Thursday, April 24, 2014

Video: Starting a Geriatric Care Management Business 1, by Cathy Cress.

 on in Aging


"Should residents at care homes help with chores?"

Creators of a new toolkit for improving quality of life in residential care say that helping with housework can benefit resident.

"Judy Downey, chair of the Relatives and Residents Association, which supports older people receiving care, says: "If somebody wants to peel the carrots or set the table, or make their own cup of tea, why not? The important thing is that care workers do it with them and don't send them out to dig the garden just to get shot of them."...


"How to get an Alzheimer's Patient to Shower".

From Alzheimer's Reading Room :

5 Tips, How to get an Alzheimer's Patient to Shower

..."I noticed that when my mother took her cloths off she would say every single time - I'm cold, I'm freezing. Now I wasn't cold, I was hot. We had to keep our home at 78 degrees or Dotty would say, I'm freezing. I adjusted to that problem.
The tip. Turn the shower on and adjust the temperature of the water to - just right for a shower.
Close the bathroom door so the room warms up. You know that nice feeling you get when it is nice and toasty in the bathroom. Make sure you close the door in the bathroom, and then go back to step one."...


Wednesday, April 16, 2014

Physical Activity in the Prevention and Management of Alzheimer's Disease

AUDIO PPT in english version at :

link :

TV Show INSIGHT on Lok Sabha Channel : "Why Seniors Matter !

TV Show INSIGHT on Lok Sabha Channel : Let's listen to them on "Why Seniors Matter !" 
(video in english)

Tuesday, April 15, 2014

MSc in Dementia Studies (On line) from Stirling University: 10 Scholarship for Indian Students.

MSc in Dementia Studies (On line) from Stirling University. 10 Scholarship for Indian Students. Scholarships are awarded by the Commonwealth Scholarship Commission and cover all fees and an annual grant for travel and books

Wednesday, April 2, 2014

VIDEO: What’s the difference between Alzheimer’s Disease and dementia?

If you have been confused by these terms in the past, or mistakenly thought that they were the same thing, you might want to watch this film. (english version)

Sunday, March 30, 2014

Need for well-designed dementia awareness campaigns by Swapna Kishore.

From Swapna Kishore on Swapna Writes Blog: 

..."Dementia awareness is pathetic in India, a situation confounded further by misinformation and stigma related to the symptoms and to words like dementia and Alzheimer’s Disease. This results in multiple problems for affected persons, and my contention is that spreading dementia awareness is the key to improving the situation, and the fastest way to change things in the Indian society. 

For the purpose of this discussion, I look at the following broad areas:

Benefits of increased awareness
Awareness campaigns are an effective use of limited resources
Sustained, well-designed campaigns should be used to make a lasting difference"...


Understanding Dementia MOOC.

"Launch of the Understanding Dementia MOOC this Monday 31st March. There is still time to register."...


CARE3: "Changes in the home environment to help our seniors." Chennai.

Chennai: "Changes in the home environment to help our seniors." This is an excellent list to make one's home more senior friendly and help those we are caring for stay as comfortable, safe, and active as possible. Please take time to read and share this comprehensive list - and if you have anything to add please share your thoughts in the comments!

Sharing experience: "Changes in the home environment to help our seniors"

Our intent of changes at home is to help the elderly:
• do their daily activities on their own
• relax and feel safe

Some of their challenges:
• difficulty in movement
• limited vision and hearing
• they have craving for food at different times and need food to be soft"....


Living with dementia magazine, Alzheimer's Society.

"He says: ...'There are six men in the group and we meet on a regular basis. We are able to relate to each other better than we could to other people.

'If there's anything bothering us we are able to talk openly about it. It's an absolute godsend to us all.'
John McErlane at homeAs well as spending time together the group have been involved in projects to help raise awareness of dementia. They worked together to produce a DVD titled Living with dementia – My story, in which they share their personal experiences of dementia and the support they have received since joining the group.
My world

Group members were also involved in a photography project, working with a professional photographer to take pictures that illustrate what it's like for them to live with dementia."...


"Economics of ageing", INDIA.

Universal health cover, among other things, is worth considering.


"Medical care requires policy attention. The high cost of medical treatment and non-availability of health services results in deteriorating health. Those who can afford these services spend a substantial proportion of their savings on medical care. For others, especially those from the unorganised sector, financial constraints, lack of time, and distance to the hospital inhibits access to medical care.

Hence, universal coverage of old age health insurance is worth considering, as health-related expenditure rises significantly with age.

The challenge of a rising aged population is expected to intensify. In order to reach out to the large number of elderly, the involvement of the private sector, NGOs and religious institutions also needs to be considered.

Public-private partnerships can do a world of good."....


KERALA : "novel scheme "Dial a doctor".

THIRUVANANTHAPURAM: As part of strengthening public health services, Kerala government on Monday launched a novel scheme "Dial a doctor" which will enable the public to seek health-related advice over phone round-the-clock from doctors by dialling a toll-free number. 

Inaugurating the project, chief minister Oommen Chandy said the facility is a major step in the healthcare sector. 

Under the programme, a person can dial 1056 and avail the advice of doctors especially regarding first aid, vaccination and health problems. The service is being made available through the department's call centre, Disha, which can be accessed through the phone number. "...


Saturday, March 29, 2014


On PRIVACY and DIGNITY : "From a personal perspective, working to keep someone's dignity out in the wider community has been something I've struggled with. Do I tell all the local neighbours about mum and dementia? Of course I want them to be able to support her - but, is this the right way? What about local shops and services - how much should I tell them?

In discussions with her GP, am I always careful to facilitate the conversation in a supportive way, rather than dominating the conversation myself?

Do I find myself making decisions because "I know best", or do I talk it through with mum in an appropriate way? And, in discussions with family members, is it always appropriate to tell them everything? ....

The University of Bradford has produced a video about decision making and a person with dementia: ..."


Sunday, March 2, 2014

TAMIL NADU : ""Family Caregiver Support Meeting" on March 1st 2014.

Initiative from Care3 in TAMIL NADU : ""Family Caregiver Support Meeting" on March 1st 2014.

"current and former caregivers came together for an enriching evening. Dr. M.R. Murali gave a thoughtful and animated presentation on Deconditioning in Caregivers and highlighted how important it is for Caregivers to prevent tiredness, disability, and illness as they are caring for others. 

He discussed the importance of staying as active mentally and physically as possible - both for Caregivers and their family members - and focused on quality of life.

His clear explanations and understanding of the issues faced by Caregivers and those they are caring for really hit home with everyone present. 

Our tea time was just buzzing with activity! There were a lot of new faces and our veteran attendees were engaging all in conversations and making sure positive connections were being made. 

We ended the session with a discussion on some of the challenges we face in our interactions with health care providers (doctors, hospitals, etc.) and also some of the positive experiences we have had. 

We shared tips on ways to make these interactions with the health system better. 
It was our highest attendance for any meeting yet and it is just so moving and heartening to see our group growing and more Caregivers getting connected each month. 

Thanks to Dr. Murali and all those who attended and shared their time and thoughts with us! We will be posting a video of his full presentation this week for those who were not able to attend."

See the photo album at : 

Dr. Murali is Director of Clinical Immunology from Massachusetts General Hospital in Boston. 

Wednesday, February 26, 2014

Documentary " BURDEN OF LOVE" on Alzheimer's Disease in India in 1998.

Documentary (37 min) " BURDEN OF LOVE" by Brahmanand Singh on Alzheimer's Disease in India in 1998

 In the world, many teams do gather now occupational therapists, nurses, psychologists, physiotherapists, neurologists and neuropsychologists... working in coordination in Homes and at-home. Also, training programs for families, information campaigns and get together. Many things still need to be done that's why it is important to update regularly one's knowledge and innovate. It is now person-centred approach based on the strenghts more than deficits that prevails.

Creating and Sustaining Park Walks for people living with dementia, UK.

Initiative from the UK : "Creating and Sustaining Park Walks for people living with dementia - a Dementia Adventure partnership workshop".

..."These walks are ideal for local care home groups looking to join a supportive community walk. We design, lead and support the walks with our own staff and volunteers and in total we spend about 90 minutes out walking, chatting, reminiscing and appreciating nature and people often stay for tea and cake or lunch after the walk in the pleasant courtyard cafe."...


A "whole hospital" approach"...

Initiative from the UK : ..."A "whole hospital" approach must be adopted across England and Wales to educate all staff, from porters to doctors, to embrace dementia care and ensure it is never considered "someone else's speciality". 
At the Royal United Hospital Bath NHS trust, three specialist dementia co-ordinators have been recruited who work with carers and act as a central point of contact for staff across the hospital who encounter, or are in charge of, patients with dementia."...


Thursday, February 20, 2014

Video: Aggression & Anger in Alzheimer's Patients: How to handle

Video : "Alzheimer’s Aggression: How To Handle

Dealing with aggression in later stage Alzheimer’s can be a very difficult task to handle. Understanding why the aggressive behavior arises, as well as learning various ways to deal with it, is important.

Click the video below to learn some helpful ways to manage aggression."

Video : Managing Alzheimer's Patient Behavior

Video: "Caring for a loved one who has Alzheimer’s disease is challenging and can cause a high amount of stress in your life. This video provides several different ways to manage and handle stressful situations that may arise during your care-giving experience."

Tuesday, February 4, 2014

Video : Interacting with a patient with Dementia/Alzheimer's for bathing

Video on Interacting with a patient with Dementia/Alzheimer's for bathing :
(english version)

Video: "What do you anticipate will be the most important clinical development in Alzheimer's disease in 2014?

That's the question we asked Ronald C. Petersen, MD, PhD, of the Mayo Clinic in Rochester, Minn., Allan Levey, MD, PhD, of Emory University in Atlanta, Alan J. Lerner, MD, of University Hospitals Case Medical Center in Cleveland, and George T. Grossberg, MD, of St. Louis University in St. Louis. 

In this video they give their insightful, but very different, answers -- ranging from biomarkers for tau tangles to lifestyle modifications and costs of dementia care."

video :



Old Age Home (A home for street picked suffering from Alzheimer/Dementia and fractures/ paralysis)

"We are currently running Vridh Ashrams for helpless, street picked old aged suffering from Alzheimer/Dementia as well as with fractures and paralysis)

We believe that old aged must not die out of Alzheimer/dementia/ (sudden memory loss) on streets of Delhi/NCR.

The serving the helpless old people is the best way to attain peace and prosperity in life turns out to be a ray of hope these helpless old people suffering from various diseases and disorders like Alzheimer, Bed ridden and mentally.

We provide to each of our old aged member at home are life-long for no cost added to them. We serve them by giving love, health care, food, clothes, shelter, and cremation."