Alzheimer's Disease in India Consultancy Service

If you have a project, contact us for advice at hendi.lingiah@gmail.com

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Tuesday, October 29, 2013

"Reactions to dementia" by Kate Swaffer.

"When a person with dementia ‘comes out’ about their diagnosis, and openly admits they are living with the symptoms of, and diagnosis of dementia, there are a number of reactions and responses. The person with dementia (PWD) is thrown into complete turmoil; anger, ‘why me?’, surely it can’t be true, let’s get a second opinion, grief, and many other things. Coming to terms with such a diagnosis is a very difficult thing for every family facing the arrival of Mr Dementia.
The responses of others varies. Some are over protective, immediately wanting to help you, take over for you, and try to love you more. Others openly suggest or accuse you of lying; if you can still speak and function, then you can’t have it, or maybe you are lying for notoriety or sympathy. Many others say, ‘but I forget things too’, or ‘my mother/father is like that’. Then if you remember something in a conversation, some say, ‘see, you can’t possibly have dementia’."...


Wednesday, October 9, 2013

On SNOEZELEN THERAPY and how to implement it properly.

Know more about SNOEZELEN THERAPY :


How Does It Work?


Snoezelen RoomIn Snoezelen therapy, multi-sensory environments are created using visual, auditory, tactile, and aromatherapy stimulation. The concept has been successful with people of all ages, and in this safe, comfortable setting, Alzheimer’s and dementia patients have found peace and solace. The “treatment” can elicit calmness, an overall feeling of wellbeing, and a sense of security. In some cases, memories are awakened through the process.
"Depending on how they are used, light, sound, and scents can evoke a variety of responses, and there is a risk of overstimulation. For this reason, when creating a “Snoezelen room,” it’s important to tailor the setting to each individual’s unique needs. Ideally, patients should be presented with a variety of options and have the freedom to choose the sensory experiences they find most pleasing."...

Source: http://alzjourney.com/2013/09/26/snoezelen-therapy-for-alzheimers/

Monday, September 23, 2013

Dementia Care Practice

Alzheimer’s Association: Campaign for Quality Residential Care
Dementia Care Practice 
Recommendations for Assisted Living Residences and Nursing Homes

link to Pdf:
https://www.alz.org/national/documents/brochure_dcprphases1n2.pdf

Friday, September 13, 2013

Poster World Alzheimer's Month India 2013


Bangalore: World Alzheimer's Day 2013

"Nightingales Centre for Ageing & Alzheimer’s and the Bangalore Chapter of Alzheimer’s & Related Disorder Society of India are organizing a 60 km Marathon Memory Walk to mark the World Alzheimer’s Day this year in association with ETCM hospital, Kolar. The Walk will commence from Kolar on 19th Sep and culminate at Bangalore on 21st Sep, the World Alzheimer’s Day with a public meeting.
A Mobile Exhibition will lead the Walk. A large number of caregivers, senior citizens, health care professionals and those concerned with dementia are expected to participate. Enroute, over ten memory screening camps especially in Primary Health Centres in the rural areas will be organized. Placards will be displayed and pamphlets on dementia will be distributed as part of public education.
In the public function, over 100 dementia patients will be present, in addition to the participants of Walkathon."

Kochi, Kerala: Memory Walk for World Alzheimer's day 2013

Kochi, Kerala: Memory Walk in the "journey of Caring" on 21st September 2013 Saturday at Kochi.








Mumbai: Second 'Dementia Sense' Seminar, 2013

Mumbai: Second 'Dementia Sense' Seminar will be conducted in Mulund,Mumbai.On Friday, 20th, September, 2013. For Venue and Registration details, visit following link:


https://www.facebook.com/events/514370758638825/

World Alzheimer's Day 2013 Kerala: Inauguration of Memory Clinic

Ardsi Kkm: Inauguration of Memory Clinic at Malankara Medical Mission Hospital, Kunnamkulam on 21st September 2013 Wold Alzheimer's Day Celebration.











Saturday, August 17, 2013

Photo of the brain showing functions/areas mainly and progressively affected in AD.

Photo of the brain showing functions/areas mainly and progressively affected in AD. 

Therefore, stimulation of the person affected is important, without overstimulation of course, in order to keep the brain active delaying this way its progressive impairment therefore improving/reinforcing quality of life.  In addition to providing enjoyement in the person's daily life. 

Ideally, in association with treatments to reduce psycho&behavioral disorders and physical exercices to keep muscular strenght. Caregivers (Pro and/or Family) have an important role to play from supervision only to necessary assitance. 

Support groups (through phone/meeting/net) may be helpful to mitigate loneliness, find support, share happiness moments and also tips worth trying in daily life.



                       Double click on the picture to enlarge it.

Saturday, August 10, 2013

"STUDY ON PERCEPTIONS TOWARDS HUMAN RIGHTS OF OLDER PERSONS", INDIA, 2013.

"The state of hospitals and clinics across the country is not standardized. 

While in urban India with the right kind of resources an elderly person can get good healthcare facilities the same is not the case for a majority of the population as the infrastructure and sensitivity towards older persons is lacking on the medical front. 

Coupled with the already existing medical issues for older persons, lack of infrastructure and sensitization of hospital staff and clinics towards the elderly."....

Source: "STUDY ON PERCEPTIONS TOWARDS HUMAN RIGHTS OF OLDER PERSONS" 
Agewell Foundation Research and Advocacy Centre.
(In Special Consultative Status with the ECOSOC at United Nations since 2011)


Link to Pdf and english version: http://www.agewellfoundation.org/perceptions_towards_older_Persons_July_2013.pdf

Tuesday, August 6, 2013

"Sundowner’s Syndrome"

"Sundowner’s Syndrome is the name given to an ailment that causes symptoms of confusion after “sundown.” 

These symptoms appear in people who suffer from Alzheimer’s Disease or other forms of dementia. Not all patients who suffer from dementia or Alzheimer’s exhibit Sundowner’s symptoms, however. 


Conversely, some people exhibit symptoms of dementia all day which grow worse in the late afternoon and evening, while others may exhibit no symptoms at all until the sun goes down."...

link: http://sundownerfacts.com/sundowners-syndrome/

Principles to try to follow every day in AD caring journey:








                     Double click on the pictures to enlarge them

Saturday, August 3, 2013

Dementia National Strategy as per France (english version): 44 measures.

44 measures in order to fight Alzheimer’s disease and related disorders

Alzheimer’s disease and related disorders progress inexorably as people age : over 85 years old, 1 woman out of 4 and 1 man out of 5 suffer from them. Faced with this major scientifical, medical and social challenge, the President of the French Republic launched on 1rst february 2008 the "plan Alzheimer 2008-2012". Centered on the person with the disease and his or her family helpers, the plan aims at unprecedently developping research, facilitating a timely diagnosis and taking a better care of the person and his or her helpers.
National plan for Alzheimer 2008-2012:

Improving quality of life for patients and carers

Objective 1: Increasing support for carers

Objective 2: Strengthening coordination between all actors involved

Objective 3: Enabling patients and their families to choose support at home

Objective 4: Improving access to diagnosis and care pathways

Objective 5: Improving residential care for better quality of life for Alzheimer’s disease sufferers

Objective 6: Recognising skills and developing training for health professionals

Knowledge for action

Objective n°7: Making unprecedented efforts in research

Objective n°8: Organising epidemiological surveillance and follow up

Mobilising around a social issue

Objective n°9: Providing information for general public awareness

Objective n°10: Promoting ethical considerations and an ethical approach

Objective n°11: Making Alzheimer’s disease a European priority



Nursing Management of Dementia : NURSING CARE PLAN

VIII. NURSING CARE PLAN
A.
Nursing NeedsGoalsPlanningImplementationEvaluation
Therapeutic Needs1. To All types of illness may be treated symptomatically reduce any types of infection
2. To recover from any infection
3. Help him to develop sense of security.
All types of illness may be treated symptomatically1. Give medicines as prescribed.
2. Help the patient to express his physical complaints.
3. Give assurance that medicine will be provided in time.
B.
Nursing NeedsGoalsPlanningImplementationEvaluation
Physical needs
Prevent from injuries
1. To help to avoid repeated injuries
2. To feel confident that environment is safe.
1. Plan safe and less congested environment .
2. Plan to keep few activities, no injuries to patient
1. Provide adequate furniture in the room.
2. Check no wires, tubes etc. are spread in room.
3. Electricity connections should be covered
4. Provide the same physical setup.
5. Any change in the room should inform the patient.
6. Provide a bell.
7. Adequate light.
8. Pleasant and quite environment.
Moves in the room with confidence.
Promote Communication1. To enhance self concept.

2. Develop sense of satisfaction of interacting with others.
3. Feel accepted
1. Spend time with patients.

2. Selective Communication
1. Approach in a slow calm manner.
2. Observe non-verbal cues.
3. face the patient
4. Talk gently
5. Give simple clear message him to talk    .
6. Listen with respect
70 Repeat instruction frequently
Express happiness that, he is able to convey message clearly

Nursing NeedsGoalsPlanningImplementationEvaluation
Reduce disorientation1. To help him feel comfortable and decreased confusion
2. To help in regular activities
3. To feel secure and decreased restless.
1. Re-orientation
2. Clear communication
1. Orient him to time, place of persons with help of a clock calendar and physical setup.
2.  Call him by his name.
3. Repeat the routine activity
4. Avoid argument
5. Speak slowly, clearly  in simple sentence.
6. Convey warmth and concern.
7. Touch him to provide a sense of security.
8. Respond to his question
9. Encourage him to  speak clearly, not to mumble words
10. created comfortable environment without stress or hurry
1. He looks less confused
2. Feels comfortable in the setting
Help in personal hygiene1. To help patient to feel fresh
2. Develop sense of well being
3. Habit of cleanliness
4. Prevent infection
5. Feel accepted
1. Setup a routine plan  out activities for regular bowel and bladder habits1. Help him to brush and take bath
2.  Help him to clean his back
3.  Give message at the back to prevent bed sore.
4. Change position
5. Observe skin for injuries, bruising or abrasion
6. If in continence change the dress put deodorant to prevent odor
7. If constipation provide laxatives
8.   Step by step directions to be given
9. Don’t be in hurry
10. Encourage to comb, shave etc.
Patient brush his teeth, take bath, combs hair trice to tries to be self sufficient.

Nursing NeedsGoalsPlanningImplementationEvaluation
Help to adjust with perceptual change1. To reduce anxiety
2. To adjust perceptual deprivation
3. To improve in his sensation
4. To decreased irritability
1. Patients are very confused and had anxiety.
2. Not able to recognize places
3. Help to reduce anxiety and confusion
4. Patient will be disturbed with hallucination. Help him to cop up
1. Re-orient the place and allow him to touch and feel familiarity .
2.Allow him to smell his old perfume
3. Prevent him from burns. Lack of sensitivity may cause burn.
4. Speak very clearly to patient.
5. Help the relatives to understand that changes is due to disease.
Patients feel less restless.
Help to adjust in alteration in memory of attention1. Help the patient to increased attention span.
2.  To adjust memory changes.
1. Patients get irritated unable to recall, recent events.
2. Feels inadequate in front of relative and friends.
1. Make them to understand change is due to disease.
2. Tell the relatives not to get irritated if he were forget to inform important messages.
3. Switch an old songs  or show old photographs to stimulated memory.
4. Provide activities of his own choice
5. Give appreciation for complete work
6. Provide opportunity to do the tasks, which he had been doing for many years
1. The patients shows concentration and efficiency in his works
2. Feels comfortable with old things.

Nursing NeedsGoalsPlanningImplementationEvaluation
Help to adjust with perceptual change1. To reduce anxiety
2. To adjust perceptual deprivation
3. To improve in his sensation
4. To decreased irritability
1. Patients are very confused and had anxiety.
2. Not able to recognize places
3. Help to reduce anxiety and confusion
4. Patient will be disturbed with hallucination. Help him to cop up
1. Re-orient the place and allow him to touch and feel familiarity .
2.Allow him to smell his old perfume
3. Prevent him from burns. Lack of sensitivity may cause burn.
4. Speak very clearly to patient.
5. Help the relatives to understand that changes is due to disease.
Patients feel less restless.
Help to adjust in alteration in memory of attention1. Help the patient to increased attention span.
2.  To adjust memory changes.
1. Patients get irritated unable to recall, recent events.
2. Feels inadequate in front of relative and friends.
1. Make them to understand change is due to disease.
2. Tell the relatives not to get irritated if he were forget to inform important messages.
3. Switch an old songs  or show old photographs to stimulated memory.
4. Provide activities of his own choice
5. Give appreciation for complete work
6. Provide opportunity to do the tasks, which he had been doing for many years
1. The patients shows concentration and efficiency in his works
2. Feels comfortable with old things.

Nursing NeedsGoalsPlanningImplementationEvaluation
Help to adjust with perceptual change1. To reduce anxiety
2. To adjust perceptual deprivation
3. To improve in his sensation
4. To decreased irritability
1. Patients are very confused and had anxiety.
2. Not able to recognize places
3. Help to reduce anxiety and confusion
4. Patient will be disturbed with hallucination. Help him to cop up
1. Re-orient the place and allow him to touch and feel familiarity .
2.Allow him to smell his old perfume
3. Prevent him from burns. Lack of sensitivity may cause burn.
4. Speak very clearly to patient.
5. Help the relatives to understand that changes is due to disease.
Patients feel less restless.
Help to adjust in alteration in memory of attention1. Help the patient to increased attention span.
2.  To adjust memory changes.
1. Patients get irritated unable to recall, recent events.
2. Feels inadequate in front of relative and friends.
1. Make them to understand change is due to disease.
2. Tell the relatives not to get irritated if he were forget to inform important messages.
3. Switch an old songs  or show old photographs to stimulated memory.
4. Provide activities of his own choice
5. Give appreciation for complete work
6. Provide opportunity to do the tasks, which he had been doing for many years
1. The patients shows concentration and efficiency in his works
2. Feels comfortable with old things.

Nursing NeedsGoalsPlanningImplementationEvaluation
Nutritional need1. To build general health
2. To make him to take regular meals.
3. Build up health
1. May take small quantity for fear of in continence
2.. Soft, easily digestible food.
1. Ask his likes and dislikes.
2. Soft and frequent meals.
3. Don’t scold him, if he has messed up
4. don’t make him to hurry up
5. Provide roughage and green leafy vegetable.
Patient enjoys soft meals.
Improve sleep1. To reduce loneliness and depression at height
2. To feel fresh
3. Participate in day activities.
4. Get reduce fatigued
1. Planning sleep schedule.
2. A calm and quite environment
1. Discourage day time sleep.
2. Keep him busy with activities
3. Encourage warm water bath at night
4. Keep the room calm.
5. Give bath massage
6. Allow him to read books in he interested
7. Provide warm milk
Sleep for long hours at night
C.
Nursing NeedsGoalsPlanningImplementationEvaluation
Psychological needs1. To reducing the feelings of isolation.
2. To develop sense of belongingness
3. Enhance self concept
1. Feels alien among his own
2. Likes to participate in activities
3. Provide an attitude of concern
1. Call him by his name.
2.Tell the relatives to visit
3. Encourage activities
4. Actively listen to his past experience
5.Listen him with respect
6.Encourage visit by children
Feel satisfied
Talking to others
D.
Nursing NeedsGoalsPlanningImplementationEvaluation
Recreational needs1. To decrease social isolation
2. To spend time productively
3.To enjoy life
4. Feel useful for family members
1. Help in diverting patients mind
2. Hobbies of his own, in which some productive outcome is possible
1. Tell children to pay with patients, simple games.
2. Provide knitting which she enjoys.
3. Read story for children.
4. TV. program of his choice.
5. Encourage to interact with his own group
Patients enjoys life and feels he is useful for family members.
E.
Nursing NeedsGoalsPlanningImplementationEvaluation
Spiritual needs1. To help him to follow his routine
2. To reduce distress and despair.
1. Help him to maintain their rituals
2. Help them to adjust
1. Allow the patient to attend his regular prayers.
2. Don’t get irritated with extra time spent by patient.
3. Graduals help him to reduce the time.
4. Provide religious books. Videos and cassettes.
The patient says “ Now I am not able to pray for long because I get tired”.
F.
Nursing NeedsGoalsPlanningImplementationEvaluation
Discharge plan1. To help him to be self sufficient.
2. To cope with changes due to illness
1. Depends on family support.
2. Discuss with family
3. To develop realistic goal towards patients recovery
1. Encourage family to talk about problems they have to face at home.
2. discuss the plan of care at home.
3. Explain the needs to make physical and social adjustment
4. Educate patient’s relatives for after care help from various agencies.
5. Importance of follow-up care
Relative of patients get prepared to adjust at home.

Video: What is Alzheimer's disease? (in english)

Thursday, July 25, 2013

HYDERABAD, 10-13 June 2014: "IFA 12th Global Conference on Ageing: Health, Security and Community".


GENERAL REGISTRATIONS NOW OPEN!
CALL FOR ABSTRACTS NOW OPEN!

The International Federation on Ageing is proud to be co-hosting, alongside the Heritage Foundation, the 12th International Federation on Ageing Global Conference. The event is scheduled to be held from June 10-13, 2014 in the Hyderabad International Convention Centre in Hyderabad, India.


The themes of the conference have been established to be Health, Security and Community."....

link: http://www.ifa-fiv.org/ifa-activities/ifa-conferences-meetings/ifa-12th-global-conference-on-ageing/

“Grandparents Wish Collection and Fulfillment” in Old Age Home, Bangalore.


..."Having been a volunteer at the Make a Wish Foundation in Bangalore, I was familiar with the concept of collecting wishes for children suffering with life-threatening illnesses. Why not extend the thought, I wondered? Why not be a genie to the elderly as well? I chose to act immediately, and emailed volunteers to generate a good response.


It was the last day of my Sabbatical and many people arrived to show their support for the wish collection and fulfillment initiative. We reached the Ashram so early that the elderly were still asleep. But that didn’t matter – I used this opportunity to brief volunteers on collecting wishes.
To my surprise, it was auto driver Murali (whose story can be found at Super Auto Driver Murali) who collected more wishes than any of us! As the event progressed, those who wanted to leave early seemed to forget all prior commitments and decided to stay! A total of 22 wishes were collected and fulfilled in the weeks to follow.
While some grannies wished to eat ice cream candy, others wanted to watch old movies and some even wanted to eat chicken Biryani. Extravagance wasn’t what these elders wanted. All they wanted were the little things: sweets (Chirote, Doodh Peda, laddoos), fruits (jamoon, banana, pineapple, watermelon), headphones, a Telugu movie, a visit to a temple or a walk at the local park."...

Full article at: http://chaiwithlakshmi.in/2013/inclusiveindia/om-ashram.html





Alzheimer's Disease in India:

Great job! at my place it is extended to "Life Projects for Elderlys", we try to know the persons habits, 

abilities, routine and enjoyments especially for those suffering from Alzheimer's Disease and Related 

Disorders, also to provide adjusted stimulation to refrain the loss of autonomy, keep them active and as 

long  as possible decision-makers of their own life but under supervision. It is part of the carepath and 

provide well-being among them but also among the caregivers (families and pros). They have a lot to 

know  about each other, to enjoy together..and sometimes they are even surprised of the 

remaining abilities!





Saturday, June 29, 2013

ARDSI has formed a new chapter in Mysore, Karnataka.

"The chapter becomes the 20th in India and the second chapter in Karnataka. ARDSI Mysore currently has thirty two members and aims to identify people with dementia as well as training medical professionals.

"According to a survey by Mysore Medical College and Research Institute in 2008, 3,000 people in Mysore were identified with dementia. The Mysore chapter of ARDSI aims to identify people suffering with dementia in the district and examine them through Mini Mental Status Examination.

ARDSI Mysore chapter co-chairman Hanumanthachar Joshi said: "The chapter also has plans to train personnel as they are the prime pillars to dementia care. Professionals like nurses, dieticians, social workers, occupational, speech and physical therapists and doctors will be trained."

link: http://timesofindia.indiatimes.com/city/mysore/Help-arrives-for-Alzheimers-patients-in-Mysore/articleshow/20624084.cms


1st ADI-MetLife Foundation Awards: Awards highlight global creativity in dementia care education. 

"Alzheimer’s and Related Disorders Society of India
Project Title: 
Making Cochin a Dementia-Friendly Community – An ARDSI Approach
ARDSI’s project, which aimed to raise public awareness of dementia by targeting different groups, took place throughout 2011 and 2012. Activities included awareness programmes for school children, dementia care tasters for student practitioners and skills training for care home staff. The programme received strong feedback from participants and is a good example of a model that is easily transferable to other countries."


link: http://www.alz.co.uk/adi/pdf/gp201306.pdf

Wednesday, June 26, 2013

Jagruti Rehab Dementia Care, Pune.

JAGRUTI REHAB: Dementia Care


From Dr Amar Shinde, Pune: "At Jagruti, we are having separate dementia ward with mostly patients in moderate to severe stages of dementia... we have currently 30-40 dementia patients, many of them are incontinent, violent, not eating, poor self care.... we provide persistent care, supervision & 24 hrs medical care...."

           "Dementia is a wide spread  challenging geriatric disorder associated with loss of social judgment, higher functions & forgetfulness. Which interferes with day today activities of patients & social interaction.
                We provide consistent observation & assistance to the old patients, right from their daily activities to recovering  certain physical & cognitive functions.
Read More..
                Special equipments like Fowler beds, Bed pans & pots, Walkers, Traction set, Nebulizer, ECG machine, oxygen cylinders, airways, emergency medicines,  etc. are
                  Airbeds of the Bed-ridden patients
Wound dressings, bed-sore care also available.
We provide maximum hospital care except ventilation.
Affiliation with Noble Hospital for intensive care in emergencies

All of our rooms are located in two wings of the house, making night-time supervision easy to obtain from our awake-night staff.
Each room is easily accessible to our staff so clients can signal for staff assistance.
Each room has a lovely view as well.
Accompanied walks in courtyard for old patients
Transportation to activities, medical appointments, community outings or simply a trip to the garden  is provided by our trained staff.
Family therapy includes acceptance of loved one as he/she is having dementia is very difficult.
Old spouses are often find themselves difficult as they are also old.
Frequent family visits are encouraged.
Housekeeping and Laundry : Housekeeping and laundry are included in the monthly rate.  Clients who wish to remain  independent are encouraged to participate at any level they are able.  Sometimes being able to help with household  tasks is an important way for a client to engage in day to day activity.  Bed sheets, towels and toiletries are provided."


link:
Dementia Care | Jagruti Rehab