To all my friends and members living in India, in the aim to better understand the detection process regarding Alzheimer’s Disease and Related Disorders in India, I made a questionnaire (yes another one;-).
I’d like you to answer sincerely as the questionnaire will remain anonymous. It is a good way to convey and discuss altogether of the “picture of the situation” patients, their families and professional carers in India are facing.
I’ve tried to be exhaustive but I certainly forgot many options.
Don’t hesitate to discuss and give your explanations/views/insights for a better understanding of this specific situation in India today, to find ways to improve the diagnosis.
All constructive inputs are welcome.
I'm interested in your answers according to the experience of each one of you in India that's why I sent the questionnaire to each of you. It'll remain and treated anonymously for you to feel safe to share your personal insights as I am interested in that too.
Also it'll helps us to start a discussion and get tracks to work on for a better improvement of the "dementia carepath" in the future in India. To voice our concerns toward the authorities in the field and give us more weight in the decision-making process for our community.
Reply sincerily, "According to your experience".Thanks for your participation.
Before starting, define your profile:
What is your Age Category? Put an X beside the category fitting your age:
18-24: 25-34: 35-44: 45-54: 55+:
What is your Education Level:
“According to your experience, what could possibly be the reasons for which Alzheimer’s Disease and others Dementias may be under-diagnosed by Medical Doctors in India?”
To reply to the 20 questions-Questionnaire: Put an X after the statement you’re agreeing with.
1° Elders and their families usually don’t come for consultations considering it is Normal Ageing?
2° Elders and their families are not enough reached and sensitized by volunteers working in the eldercare field in India?
3° Elders and their families usually decide not to undergo the diagnosis process?
4° General Practitioners usually consider that it is Normal Aging?
5° General Practitioners usually consider that it is not their medical specialty?
6° General Practitioners usually consider that more geriatric trainings should be provided to them to better detect the various dementia syndromes?
7° General Practitioners usually consider that they don’t have enough inputs to provide the patient and his family about dementia syndromes and care supports?
8° General Practitioners usually consider that there is no identified official carepath to guide the patient and his family on in India?
9° General Practitioners usually consider that there is no official geriatric guideline and recommendations in India to better support them in their practice?
10° General Practitioners usually consider that there is no need for official guidelines and recommendations to follow in India?
11° General Practitioners usually consider that there is no need for Comprehensive Geriatric Assessment in the field of Dementia in elderly people?
12° General Practitioners usually consider that geriatricians and gerontologists are too scarce resource and then hard to find/reach in India?
13° General Practitioners usually don’t identify enough the different Care Team members involved in the holistic approach in dementia?
14° General Practitioners usually don’t locate the Dementia Care Teams in their respective settings?
15° General Practitioners usually consider that it would be too costly for the patient and his family to undergo a diagnosis? (in term of financial cost, energy and time),
16° General Practitioners in India usually consider that they have a limited role in long-term care of dementias?
17° General Practitioners usually are not enough informed about the non-pharmacological and psycho-social interventions?
18° General Practitioners usually dismiss the value of the non-pharmacological and psycho-social interventions?
19° General Practitioners usually consider that they can’t do anything in Dementia Care and don’t go beyond that statement?
20° General Practitioners in India usually consider that ‘nothing can be done’ in Dementia Care and don’t go beyond that statement?
If you participate to the questionnaire, please send your response to Hendi Lingiah's Facebook inbox, or copy and paste and email it at firstname.lastname@example.org
It is based on your personal experience of the AD carpath in India though you may or may not be a medical doctor and it remains anonymous. The instuctions are provided on the links; your constructive inputs are welcome.
Thank you for taking the time of reading and responding to the questionnaire,