44 measures in order to fight Alzheimer’s disease and related disorders
Alzheimer’s disease and related disorders progress inexorably as people age : over 85 years old, 1 woman out of 4 and 1 man out of 5 suffer from them. Faced with this major scientifical, medical and social challenge, the President of the French Republic launched on 1rst february 2008 the "plan Alzheimer 2008-2012". Centered on the person with the disease and his or her family helpers, the plan aims at unprecedently developping research, facilitating a timely diagnosis and taking a better care of the person and his or her helpers.
National plan for Alzheimer 2008-2012:
Improving quality of life for patients and carers
Objective 1: Increasing support for carers
- Measure 1: Developing and diversifying respite structures
- Measure 2: Consolidating rights and training for carers
- Measure 3: Improving health monitoring for family carers
Objective 2: Strengthening coordination between all actors involved
- Measure n°4: Quality labelling throughout the country for "single points of contact", the "Maisons pour l’Autonomie et l’Intégration des malades Alzheimer" (MAIA)
- Measure n°5: Establishing "coordinators" throughout the country
Objective 3: Enabling patients and their families to choose support at home
- Measure n°6: Reinforcing support at home, advocating services by trained staff
- Measure n°7: Improving support at home using new technologies
Objective 4: Improving access to diagnosis and care pathways
- Measure n°8: Preparing and implementing a system for giving the diagnosis and providing counselling
- Measure n°9: Experimenting new payment terms for health professionals
- Measure n°10: Creating an Alzheimer’s disease information card for each patient
- Measure n°11: Creating memory units in areas that are not covered
- Measure n°12: Creating "memory resource and research centres" in areas that are not covered
- Measure n°13: Reinforcing the very active memory units
- Measure n°14: Monitoring drug-related iatrogenic accidents
- Measure n°15: Improving correct use of drugs
Objective 5: Improving residential care for better quality of life for Alzheimer’s disease sufferers
- Measure n°16: Creating specific units for patients suffering from behavioural problems within EHPADs
- Measure n°17: Creating specialized units within health care rehabilitation and follow-up (SSR) departments for Alzheimer’s patients
- Measure n°18: Accommodation for young patients
- Measure n°19: Identifying a national reference centre for young Alzheimer’s patients
Objective 6: Recognising skills and developing training for health professionals
Knowledge for action
Objective n°7: Making unprecedented efforts in research
- Measure n°21: Creating a foundation for scientific cooperation to stimulate and coordinate scientific research
- Measure n°22: Developing clinical research of Alzheimer’s disease and improving evaluation of non-drug therapies
- Measure n°23: Doctoral and post-doctoral grants
- Measure n°24: New assistant surgeon and hospital teaching assistant positions
- Measure n°25: Research in human and social sciences
- Measure n°26: Support for research groups working on innovative approaches
- Measure n°27: Support for methodological research groups in human and social sciences
- Measure n°28: Creation of a body of research in automatic image processing
- Measure n°29: Studying large patient populations (cohorts) with long-term monitoring
- Measure n°30: High-speed genotyping
- Measure n°31: Exploiting the genome sequencing of the microcebe
- Measure n°32: Training in clinical epidemiology
- Measure n°33: Developing links between public research and industry
Objective n°8: Organising epidemiological surveillance and follow up
Mobilising around a social issue
Objective n°9: Providing information for general public awareness
- Measure n°35: Setting up a telephone helpline and a website for information and local advice
- Measure n°36: Holding regional conferences to support the implementation of the plan
- Measure n°37: Studying disease knowledge and attitudes
Objective n°10: Promoting ethical considerations and an ethical approach
- Measure n°38: Creating a space for ethical thought about Alzheimer’s disease
- Measure n°39: Launching a discussion about the legal status of Alzheimer’s patients in institutions
- Measure n°40: Organising regular meetings focusing on the autonomy of people suffering from Alzheimer’s disease
- Measure n°41: Informing patients and their families about trials implemented in France
Objective n°11: Making Alzheimer’s disease a European priority
- Measure n°42: Making the fight against Alzheimer’s disease a priority for the European Union during the French presidency
- Measure n°43: Publicizing and promoting research across Europe
- Measure n°44: Holding a European conference in autumn 2008
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