Alzheimer's Disease in India Consultancy Service

If you have a project, contact us for advice at hendi.lingiah@gmail.com

Join our Family Caregivers, Volunteers and Care Professionals on Facebook and LinkedIn.

Saturday, July 12, 2008

Facing the challenge of an ageing population in India.


Alzheimer's Disease, a report about care of the elderly in India

Ms Hendi LINGIAH

A conference was held from 24th to 28th of March 2008 at the Goa Medical College, Goa, India, on “Improving Quality of Care of the Elderly” with central Theme : Dementia Care. This was in collaboration with the Alzheimer’s Disease and Related Disorders Society of India. The participants were the people involved with the Care of the Elders in Goa: Doctors, Old Age Home directors, Caregivers and elderly themselves. I felt priviledged to have had the opportunity to attend.

All over the world, the elderly population is growing continuously and in the next and it is projected that in the next few decades most of the elderly people would be in the developing countries. With improving living standards come better health and more access to medical services, leading to a decline in mortality rates and higher life expectancy.

To cope with this challenge, the National Institute of Social Defence (NISD), an autonomous body under the Ministry of Social Justice and Empowerment, has launched a National Initiative on Care for Elderly which aim to educate and train persons providing care to the elderly.

The NISD as an advisory body, a Resource and Training Centre of Excellence, runs geriatric care courses every six months in several regions of the country to make caregivers aware of the specific physical and psychological conditions of the elderly. It carries out comprehensive certificated courses provided by specialists in geriatric and gerontology on several themes. The courses cover all aspects of elderly care, problems faced by them medical and psychological ones explaining how to provide proper care in each case, a proper practices. Also and most importantly, the program emphasizes on the importance for all caregivers to be aware of the implications and the multidimensional aspects of the care of the elderly.

The Institute, through orientation workshops, also aims to create awareness among the population, including the elderly and their families, about the facilities available for them; to inform institutions/organizations private or public, of the issue of an ageing population. It then emphasises the necessity to make common efforts between government and non government bodies in implementing proper care services and infrastructures, and ultimately, to develop public health policy for the welfare of the elderly.

My contribution to that training program, at the request of Dr. Amit DIAS of the Dementia Society of Goa, the coordinator and main trainer with his colleagues from the Goa Medical College was to give a talk on my personal experience in France, a presentation of the structure I am currently working in, its aims and organization and my role in it as a psychologist. Featuring how these structures developed mostly by the Municipalities through a social policy, are inserted in the government’s public services policy in France.

Many others speakers, medical practitioners, geriatrists, psychiatrists, physiotherapists and nurses; all currently working with elderly and perfectly trained in dementia gave their contributions during these five days. They covered all aspects of Elderly Care such as: Health Problems in the Elderly, Understanding the Human Brain, Healthy Ageing, Medication, Dental problems, Nutrition, Basic Nursing Care, Physiotherapy, Prevention from fall and Assisting activities of daily living.

The Central Theme, Dementia Care, was approached through the sessions: Understanding Dementia, Aggressive behaviour in Dementia and its management, Patients with Severe Stage Dementia. Short films illustrated the disease’s signs, its effects on the family, the way to manage and the absence of help and understanding the patient and the family members were experiencing. Alternatively with these teaching sessions, the participants could ask questions, discuss situations and get advice from the specialists.

We also had Group Work sessions where I had the opportunity to get to know more of the participants and discuss with them the issues they are facing in India while offering services and care for the elderly. The Group Work sessions were specially designed to address these issues, pointing out the difficulties of working in that field, which the average population and institutions are not yet aware, specific knowledge and care practices with elderly, maintaining the structure, recruiting staff, financial resources especially were also explored.

Representatives of the NGO HelpAge India gave a talk on their action in Goa; explaining how they are supporting the eldely with Old Age Homes and how they are working through the Mobile Medicare Unit. They also mentioned the activities they plan to do in the future as the Helpline, Income Generation Program, Day Recreational Centre for Destitute and Rehabilitation of Retired Sex Workers are developed.

A special point was made about the Home Care Project, a research project launched by the Dementia Society of Goa. It is a home-based interventions project as an alternative to clinic-based interventions which are more orientated toward acute conditions of those affected by Alzheimer’s Disease. The project aims to set up within the Community a Home Care Advisor whose role would be to design individualized protocol for their situation at Home with the sufferer and his family.

Furthermore, the important issue of Elderly Abuse was approached through the Family Elderly Protection Law and its implementation on which specialists in geriatrics and gerontology are working today.

I also visited an Old Age Home, a private one, run by Sisters from a Religious Congregation in Goa. During the visit, I could talk to the residents and the owner who gave his house for this specific use. I shared my experience with the Sister Director. We discussed the functioning of the Home and shared our respective views.

Conclusion :

This training gave me the opportunity to learn more about the aged in India, the issues face in the present political climate. As a psychologist in the field of elderly care, I found this training very rewarding. The varied caregivers and medical practitioners met each other and addressed their issues in the aim of working closely in collaboration.

Such initiative provided a valuable contribution to the education and training of those institutions and families, directly taking care of the Elderly People especially those suffering from Alzheimer’s disease. Moreover, it made the caregivers, juniors and seniors, aware of the opportunities available in working with the elderly; removing their fears through information, training and supervision.

It also created an awareness throughout the population; sensitize more people to the issue of ageing, Alzheimer’s disease and appropriate behaviours. Mostly, it encouraged them to seek help and consult a geriatrist if necessary.

Goa is thus building a network of elderly care professionals throughout the territory, implementing protocols of proper care practices among the caregivers, with the aim of setting up proper care services for elderly in health institutions, at home or in residential settings. These professionals are working today on prevention and education, applying practical interventions, building a professional caregiver’s network. Let’s value this initiative of official bodies and organizations of the country in facing the challenge of a “greying population” in India.

About the author

Hendi Lingiah is a clinical psychologist presently working in France in the field of elderly care in a Communal Center for Social Action promoted by the City’s Municipality. She is involved in Gerontological Coordination organizing interventions for elderly at home, especially those affected with Alzheimer’s disease. Originally from Mauritius, she has been associated with a project of residential setting in India for people suffering from dementia, connected to the newly launched comprehensive website for senior citizens in India silver inninigs.com

Saturday, June 7, 2008

World Elder Abuse Day and awareness month in Mumbai

A new beginning ………………………….


Programme to Mark WORLD ELDER ABUSE AWARENESS MONTH (WEAD)
June 2008


On the occasion of World Elder Abuse Awareness Day on 15th June 2008, Silver Innings, A Dedicated organization for senior citizens and their family members will be commemorating World Elder Abuse Awareness Month from 1st June to 30th June 2008.
It has taken the initiative to make a petition which will have recommendations to the Government and the society to eliminate elder abuse at both micro and macro level. We are also trying to network with organizations working with elderly in Mumbai and all over India.

World Elder Abuse Day programme aims to increase society's ability, through various programmes, to recognise and respond to the mistreatment of older people in whatever setting it occurs, so that the latter years of life will be free from abuse, neglect and exploitation.

In order that this issue is adequately highlighted, Silver Innings is planning to organize various activities for the month of June and reach out to elderly people themselves and also to other age groups for spreading awareness regarding what constitutes elder abuse and the different types of abuse which take place in society. Our activities will start on June 1 and will end on 30th June 2008.


Objective:

1

• To create awareness in elderly people themselves regarding what comes under elder abuse.
• To sensitize young people regarding elder abuse and enabling them to reflect on their own attitudes towards the elderly.
• To bridge the intergenerational gap between elderly and young people.
• To create awareness in media and society at large regarding elder abuse.

Programme:
• To hold Elder Abuse Awareness Month from 1st June to 30 h June
• To Publish Three Best Essay on Elder Abuse on www.silverinnings.com (we had Invited Essay on Elder abuse) on 1st June 2008.


2
• To host Online Petition with regards to Elder Abuse and recommendation to Government and Society, this will be posted from 29th May to 13th June (15days) on www.silverinnings.com and other sites
• To submit Petition to Government on 14th June, eve of Elder Abuse Day
• To participate in National Seminar for Elder Abuse in New Delhi on 14th June 2008
• Awareness campaign for Senior Citizens Association in Mumbai: Holding a Interactive Lecture programme and spreading message from 1st June 2008 to 30th June 2008
• To hold Human Chain at Shivaji Park on 15th June at 8.30 am to 9.30 am with help of Elder organisation , youngsters and other networking NGO’s
• To end the month long programme on 30th June 2008 at Gate Way of India by Releasing Purple and White Balloons

For more information you can contact: Sailesh Mishra, Founder Silver Innings at info@silverinnings.com ; sailesh2000@gmail.com


A Dedicated Organisation for Senior Citizens and their Family members
Correspondence Address : Bldg: C/22, Flat: 303, Sector: 8, Shantinagar, Mira Road,
Mumbai, India 401107
Website: www.silverinnings.com
Blog: http://peopleforsocialcause.blogspot.com/
Email: info@silverinnings.com ; sailesh2000@gmail.com
Mobile: 0091 9819819145




Thursday, April 10, 2008

Welcome to Silver Innings Website, Mumbai Maharashtra, India.


This website is dedicated to our elders; it’s our way of honouring them for all they have done for their families, society and country.


We at Silver Innings are committed to ensure that ageing becomes a positive, rewarding experience for all. Ageing gracefully is the way of life we promote.We wish to help elders and their family members to overcome the challenges of ageing and show them the way to live with dignity in their sliver years.



Silver Innings is a new beginning for our Elders. It is a new path, the journey of successful ageing.


It is an initiative by four youngsters far removed in distance but united in the cause of Elders. Who’s afraid of Ageing is what this team believes in. It’s a team effort under the leadership of founder Sailesh Mishra.


Sailesh’s passion to work for Elders made him give up paid jobs for good, and his long experience in the social sector inspired him to start on his own and set up Silver Innings, a one stop destination for information for the Elderly and their family members.


Based on his own perception and experience and also from feedback received from many seniors, Sailesh felt that information on Elders in the public domain is inaccurate, dated or incomplete. There are many website for seniors, but most of them are being run by organisations and provide info on service provided by themselves. But there is no website that gives objective and comprehensive information on the issues and problems of Elders. This brought forth the need of a dedicated website, like a super market where you get everything under a single roof.


Sailesh took the lead and discussed this with his team and the seed of Silver Innings was sown. The team, with the help of some Elders, started working for the website.


The team also wanted to disseminate through this website the concept of productive ageing, the new mantra for aging gracefully.


It has been our endeavour to collect information for this website and make it comprehensive and interactive. However, since this is an ongoing process, we will keep on adding and updating.


This website can only be successful through active participation of Elders and their family members. We sincerely hope our efforts will help our Elders to live a happy, peaceful and dignified life.


This is a new chapter in ageing world and we intend to start an NGO dedicated for the cause of Elderly.


Our grateful thanks to the following individuals and institutions for their invaluable contribution towards our effort:
Dr Padmanabha Vyasamoorthy
Shirin Juwaley
Shubha Khandekar
Shobha Mathur
Bhavesh Chheda – Website Designer and Developer
Society for Serving Seniors, Secunderabad, India
The Family Welfare Agency, Mumbai
ARDSI (Alzheimer's & Related Disorders Society of India)
Help Age India



Indian Gerontological Association 2, Jaipur Rajasthan, India

RAHAT (RELIEF) - A COUNSELING CENTER FOR ELDERLY



The challenge of caring for a growing number of elderly is yet to be faced squarely. As people grow older, especially in developing countries like India, they encounter several problems. Some are physical and obviously age related. Some are due to the social structure, break up of joint family system, poverty, loss of employment, widowhood.

Some emotional problems like loss of self - esteem, lowered life satisfaction, dependence and depression, feeling of being ignored by family members . All sorts of abuses such as: mal- treatment and physically, vocally and mental torture etc.


Some problems are cognitive problems – onset of dementia and mental deterioration. Medicines or medical profession alone cannot provide solutions to all these problems. Nor do we have adequate professionals-physical or mental health professionals who can attend to the needs of elderly, especially of those requiring institutionalization or long term care within family or those who have disabilities.


Even those elderly who are not ‘sick’ or disabled do need help and guidance to live their life with dignity, with autonomy and in a disease free style. Hence it is necessary to build up a net work of support system or care system so that family and community together can create an age-friendly atmosphere so that senior citizens can live and die with dignity.


Keeping in view the association thought to provide counselling to such needy senior citizens or their family members on line.


We have a group of experts who are ready to provide help to such people the service they need free of cost on humanitarian grounds.


You may consult us for your following problems :

1. Information about changes ( both physical and mental in old age )

2. Financial management

3. Diseases which are common in old age

4. Spiritual Healing

5. Bereavement counseling

6. Leisure time activities

7. Meditation and Physical exercise to keep your body fit and alert

8. Dementia

9. Family and other social problems

10. Care of elderly

Indian Gerontological Association, Jaipur Rajasthan, India

ACTIVITIES


ONE WHO ALWAYS SERVES AND RESPECTS ELDERLY IS BLESSED WITH FOUR THINGS:
LONG LIFE, WISDOM, FAME AND POWER


Indian Gerontological Association is a non-profit organisation devoted to the well being of senior citizens and research on ageing since last 32 years. The Association came into existence in 1967 and was registered in 1968-69 (Reg.No. 212) under the Rajasthan Societies Registration Act. It is also affiliated to International Association of Gerontology.


The need of such an association was anticipated years back and we know how the world over including India, the population of elderly is showing an upward trend. Since this ever-increasing group of population has its own problems in different walks of life it becomes imperative for any balanced and stable society to be concerned about them. And much more importantly any progressive society would like to be enriched by the experience and expertise which only age and time can give.


The basic aim of the association therefore, is to plan and execute comprehensive strategies, in order to make elderly live a meaningful life. Although the association has activities for elderly in any section of population, the direction of the efforts is mainly for the unorganised sector of society. With a view to render services for health care, recreational activity, meaningful occupation and attitudinal revision the Association is engaged in:


1. Publication of a research journal- Indian Journal of Gerontology. Till date we have published 16 volumes.

2. We run a counselling centre (RAHAT-Relief) for senior citizens.


3. Organize lectures and seminars to educate elderly people about the diseases, which are common in old age.


4. We also organise courses on the Preparation for Retirement. The course contains eight modules which includes: 1.Basic information about old age, 2.ageing, health and physical disabilities, 3.Psychological aspect of ageing, 4. Economical aspect of ageing and financial management, 5.Sociological aspect of ageing, 6.Self care practices, 7.Education and awareness building, 8.Issues in care giving.


5. Organize camps for health check up of the elderly and also organize free eye operation camps. 6. We are running a Day Care Centre (UMANG) for elderly people of unorganised sector (economically backward class).


We also give consultancy to those organisations that are working in this field.


7. We are engaged in research work related to ageing and the aged.


8. We have started a health programme for rural elderly. Once in a week homeopathic medicines are given door to door to the senior citizens.


Wednesday, January 23, 2008

new website for dementia in India

by Sailesh Mishra


Hi Friends it pleasure to inform you that ARDSI,Bangalore Chapter and Nightingales Medical Trust have launched new website for Dementia : www.dementiabangalore.com

It is their commitment towards the cause of Elderly.This is an excellent website full of information for Dementia.

About the Promoters:
Alzheimer’s & Related Disorders Society of India, Bangalore Chapter is a non-profit organization registered in 2006, the Centenary year of Alzheimer’s. This Chapter is affiliated to Alzheimer’s & Related Disorders Society of India (ARDSI) which has 14 chapters across the Country.

Friday, January 11, 2008

action plan to fight A.D. in India


Dear All,


Being in Elder Care for some years I had the opportunity to work with people suffering from Alzheimer's and also their family members.


There is no cure for Alzheimer's, though there is treatment to stabilizes the Patient. Its one form of Dementia and the person suffers from Memory Loss. The rough estimate of people suffering from Dementia is 2% to 3% of the total Elderly population in India


Its terrible to see our own spouse, family members suffering form this diseases and forgetting things like day to day routine work, they forget their own partners and family members and many time become in manageable.


Since couple of years few NGO's like ARDSI has done some awareness and Central government has woken up.


We need a Action plan from Center, State Government, NGO's and Corporate.


We need to discuss:

Why not take All India Survey

The care aspect

Psycho social care

R & D

Alternate Therapies - Pet therapy, Music Therapy, Reflexology, Garden Therapy etc

Day care Center

24 x 7 Care homes

Care givers and Care takers training programme and module

Special ward in each Municipal / Big hospital

Support groups for family members

Medical treatment

Awareness among the General Practitioner and Medical fraternity

Awareness among the common man

Awareness among the Institution like Police, Schools and Colleges

Benefits for the care givers form their offices - like maternity leave

Legal angle

Tracking

Dementia Register in each Taluka /District

And so on many such issues


Can a Celebrity come Ahead and be part of National Campaign (like Polio and AIDS ) and help the cause.


Warm Regards,
Sailesh Mishra
Advisor - Society for Serving Seniors
Life Member - ARDSI,Mumbai Chapter
0091 9819819145
Blog: http://peopleforsocialcause.blogspot.com/

Forget yourself for others, and others will never forget you.